Jump to content
helplinedonate

Gardener

Members
  • Content Count

    570
  • Joined

  • Last visited

  • Days Won

    17

Gardener last won the day on November 13

Gardener had the most liked content!

Community Reputation

216 Excellent

1 Follower

About Gardener

  • Rank
    Advanced Member

Profile Information

  • Gender
    Female
  • Location
    Ohio

Recent Profile Visitors

1,573 profile views
  1. Gardener

    Loss of confidence

    Dear Miracleseeker, You have contributed so much to this forum and all of us have benefited from your kindness and experience. Believe me when I say that no parent wants their child to sacrifice their best years as their caregiver. Your mom is fortunate to have such a devoted daughter and as hard as it is to see her through this journey please know that some day you will be able to look back on all those years knowing that you did everything you could to make her life worthwhile. Your Mom, though she may not be able to say this, wants you to take care of yourself so please try to do this for her. Take care, Gardener
  2. Gardener

    "Levodopa Phobia" Case Studies

    I don't think that Dr. Okun has ever said that Levadopa does not cause dyskinesia. What I have read from Dr. Okun and also have been told by my MDS is that dyskinesia is the result of too much levadopa in the presence of Parkinson's disease. I developed dyskinesia when my dose was approaching 1000 mg a day. I lowered my dose and no longer have dyskinesia. Gardener
  3. Gardener

    elect leaders who have integrity

    Sorry, John, but it is a political statement - if you didn't intend it to be you could have simply said "get out and vote." Gardener
  4. Gardener

    The PD Roller Coaster...

    Hi Mac, Amantadine is not typically used as a challange drug. It is a weak drug for Parkinson symptoms. Sinemet is usually the drug of choice for doing the challenge. I'm surprised no one has suggested a DatScan. Ultimately it is your choice to either wait it out until the symptoms are obviously PD or try to get peace of mind now. The Sinemet challenge or DatScan are not definitive is diagnosing PD (my MDS explained that only an autopsy could do that) but either might give the doctor more information to treat. Good luck, Gardener
  5. Gardener

    Sinemet

    Usually it is advised that you start sinemet when symptoms cause a diminished quality of life. Personally, I would wait as long as possible and try other strategies for controlling symptoms (especially exercise). Everyone is different so work with your doctor when choosing the best time to start. Good luck, Gardener
  6. Gardener

    Tremor

    Thank you, Chuck. I'm really sorry you are dealing with what sounds miserable. Maybe a second opinion on that DBS idea although I can understand why you are hesitant. How long have you been diagnosed? Did the tremor start in one hand and later the other? Take care, Gardener
  7. Gardener

    Tremor

    Thank you Sherry and Kai. The tremor I experience is exhausting but thankfully infrequent. I can't imagine what it must be like for those that deal with it most of their waking hours. Good luck to you. Gardener
  8. Gardener

    Tremor

    I'm seven years from diagnosis and except for infrequent tremor of chin I have not had much of a tremor. For the past several months I have been aware of a vibration in my right arm and very recently a resting tremor in my right hand. For those who have tremor, does the tremor come and go depending on time of day, stress, tiredness, etc. or is it constant at rest? I have read that once it begins it generally is always there at rest. So far, mine has been later in the day/evening when watching TV. Any information about tremor would be appreciated. Thank you. Gardener
  9. Gardener

    Just joined the club

    Welcome JMMouse, Most of us on this forum have the common Idiopathic Parkinson's Disease which is quite different from CBD. You used the word "tentatively" and I think I can speak for everyone here when I say that I hope the doctors are wrong. You're on the right path with a MDS. These Parkinsonism diseases are complex and difficult to diagnose so consulting with the best will likely get you some answers. Hang in there and keep us posted. Gardener
  10. Gardener

    Mired in Muck

    Hi Papa57, Sorry to hear that you are going through a difficult time. I understand where you are coming from as my story is very similar. I'm amazed that you are traveling three hours to a part time job! Volunteer opportunities are everywhere so maybe finding something that you feel passionate about will help fill a void. We just recently moved from a very remote place to a small community. I found a senior center close by that I plan to visit this week and hopefully signup for exercise and other classes. After seeing how that goes, my next step will be some type of volunteer work. If you can find these options close to your home, maybe your involvement will lead to friendships that will give you even more social interactions. It's difficult to get out there at our age but so helpful in managing this disease. Good luck to you - Gardener
  11. Gardener

    For those that think C/L causes Dyskinisia ?

    I think the more interesting question is whether c/l causes dyskinesia in people without the disease. There seems to be no clear answer to this question. I've read that dyskinesia is the result of both too much c/l combined with disease progression but I'm not sure that this has been researched. Gardener
  12. Gardener

    Phantom smells???

    Interesting responses to this topic. When you research this, olfactory hallucinations are said to be rare with PD. I am still dealing with this every day -- the odor is the the same for me but varies in intensity - smoky, sweet. The worst part about it is that it has taken over the smell of coffee which used to be my favorite beverage. Gardener
  13. Gardener

    Working with Parkinson's?

    Hi Everett, Based on everything you wrote, I would bet that you have an excellent chance of working well into your 60s. Sounds like you are doing everything right and your job conditions are ideal. My own experience has taught me that not moving makes most symptoms worse. Good luck. Gardener
  14. Gardener

    Who's on your healthcare team?

    My "team" is a movement disorder specialist and I try to go as little as possible. I really don't like getting sucked into the medical industrial complex. Just another point of view - not meant to be critical of those who like going to the doctor. Gardener
  15. Gardener

    Phantom smells???

    Doesn't everyone with Parkinson's disease also have Lewy Body pathology (not necessarily dementia)? I don't have any visual hallucinations. Gardener
×