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csullivan11

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About csullivan11

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  1. Another update.. my daughter continues to amaze me. She is a very healthy 3 1/2 month old. She surprises all of us with her strength and determination. She is very active...rolling over, inquisitive, holding toys and quite opinionated! My symptoms I developed during pregnancy have not improved. It appears they are permanent. As she gains weight I worry about safely picking her up. I have adapted a halo swaddle blanket with a sling type strap to give me peace of mind when lifting her. I can manipulate it with one hand. My left side continues to lose movement and my left arm/hand is progressively weaker. I still am able through creative techniques to provide any and all the care my daughter needs...yes I ask for help when I need it. I did the same with my older children prior to this disease. I will never regret the birth of my daughter. Everytime she smiles at me it melts my heart. I pray everyday I get to see this beautiful baby girl grow up. My children are what keeps me strong and fighting. bless u all.
  2. Thank you everyone for your replies..including Rogerstar1. I did not post my personal background as I did not feel it was relevant to the question I was asking. As my original post stated,,,the pregnancy was not planned and yes we were using precautions. (Not that I feel the need to justify that to anyone.) And Yes Roger I have a husband, a very supportive family and friends. I do not have a specific time frame or expected date for my symptoms to worsen or take my life. I live my life everyday to the fullest and best of my abilities. I believe only God knows when it will be my "time". I do feel you posted many valid questions for people (sick or not) to consider when bringing a child into the world. Finances, family/spousal support, life expectancy, quality of life, etc..... All things considered, there is no shortage of people in my life who would help in an instance if it was needed. I do not "rely" on someone else to support me, my children or expect anyone to do so. Out of love and family, I would do the same for any of my close friends and relatives in a time of need as they would for me. I am a strong determined woman and do not give in to my illness....EVER. I do not wake up and say what my limitations for the day will be...only what my accomplishments will be. And to play devil's advocate..No one knows when it is "their" time. Many parents are lost in accidents, disabled or worse everyday. Should they not have brought a child into the world under the "possibility" something might go wrong?? There is no crystal ball for the future. I feed her, change her, bathe her, buy her formula, diapers, clothing etc....just for the record. The only advice I would give everyone is you don't know another persons story (full story) ask for it...I made this post for others who were potentially considering pregnancy or finding themselves with an unplanned pregnancy. Not many people have been pregnant with this disease and I wanted them to learn/benefit from my experience. Thank you all again...and don't stress on Roger too much..he has his right to an opinion just like the rest of us. My choice was personal and I don't regret a thing!
  3. Update!! Sorry it took so long to reply. Thank you all for the wonderful advice and support. My beautiful daughter was born Feb 19th...almost 6 wks early due to preeclampsia and placental abruption. She weighed 5lb 7oz! No major difficulties other than eating. She spent 10 days in the NICU and was able to come home. She now weighs 7lb 5oz. Other than an umbilical hernia and acid reflux she is a very healthy, happy baby. I did have increased and worsening parkinson's symptoms as the pregnancy wore on. My sinemet dose was increased several times and I had physical & occupational therapy. A brace was made for my left hand and left foot which helped ease the cramping at night. I am now 6 weeks pp and my parkinson's symptoms remain the same. The dr says it is too soon to tell if the increased symptoms will be permanent. My blood pressure remains high and my blood pressure medicine has been tripled. My heart rate continues to fluctuate from high (105) to low (50). Prior to pregnancy I had extremely low blood pressure. The Sinemet only works for a few hours after dose. The dr wants to wait to increase/decrease until I am 12 wks pp. when all of the hormones are out of my system. It was worth every second. I have good days and bad days, but all I have to do is look at her and it pushes me through. I have had to adapt my parenting abilities to accomodate my physical disabilties. I have had quite a few people tell me it was irresponsible and unfair to have a child while I am "sick". There are many disabled parents who have overcome physical challenges harder than mine. I may have to work harder than others at basic tasks, but my children will grow up with love and an understanding that you can accomplish anything you put your mind to. To others contemplating pregnancy.....follow you heart.
  4. I am 43 years old and 15 weeks pregnant. I have searched the internet for info and it is very limited. I was diagnosed at 39 with atypical parkinsons and sent to a movement disorder specialist. I could not move my left arm or open my left hand until I began taking Sinemet. I also had difficulty with my left leg and stumbling, stiffness and horrible cramping pain only on the left side. Now that I am pregnant, which was a surprise, my Sinemet has stopped working. I tried to wean off due to the unknown effects on the fetus, but my body would not cooperate, Just trying to find any insight to get through the next 5 months. Thank you.
  5. Hi everyone.I am 43 years old and 15 weeks pregnant. I have searched the internet for info and it is very limited. I was diagnosed at 39 with atypical parkinsons and sent to a movement disorder specialist. I could not move my left arm or open my left hand until I began taking Sinemet. I also had difficulty with my left leg and stumbling, stiffness and horrible cramping pain only on the left side. Now that I am pregnant, which was a surprise, my Sinemet has stopped working. I tried to wean off due to the unknown effects on the fetus, but my body would not cooperate, Just trying to find anyone who may have gone thru pregnancy for insight. Thank you.
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