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DaveN

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DaveN last won the day on July 13

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About DaveN

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    Male
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    Northern Virginia

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  1. DaveN

    what to do during winter

    Noah, Have you tried researching your ancestry? I can spend hours working on my family tree. It may not keep you moving but your mind will be active if you research connections and read about your family history. Dave
  2. DaveN

    New Caretaker/Drug Interactions

    Calliope, He should be taking one Azilect pill a day. He has not been taking it long, stopping should not be an issue. I’m sure Mark in Ask the Pharmacist will agree. Dave
  3. DaveN

    elect leaders who have integrity

    Which items on Patriot's list are not supported by the facts? Dave
  4. DaveN

    New Caretaker/Drug Interactions

    Calliope, it does not sound like this neurologist knows what he's doing in regards to Parkinson's. Azilect is a weak drug as far as symptoms go. It's claim to fame is slowing the progression of the disease and even that can't be proven. Exercise is the best tool we have in our toolbox with or without PD. An MRI can not diagnose Parkinson's. Tell your husband to stop taking Azilect and wait to see what an MDS has to say. I would insist on two things before your husband is officially diagnosed: 1.) Sinemet challenge 2.) DaTScan Take a deep breath and relax. I hope he doesn't have Parkinson's. Dave
  5. DaveN

    Fasting and Meds

    Super, I don't understand why you didn't take your Rytary at 6:00am. I did my quarterly fasting blood work a couple of weeks ago and did not skip my 6:00 am Rytary. Rytary is not going to mess with your blood work. FYI, taking Rytary with food may reduce its effectiveness. Dave
  6. DaveN

    Mired in Muck

    John Hoefen, i completely agree with Stump. Please check your partisan politics at the door. It just gets everybody riled up and taking sides. Most of us have Parkinson’s or support someone wit it. Papa57, I feel your pain and concern. I’m a couple of years behind you and am struggling to figure out my future and the love of my life. Keep us posted as you figure stuff out because it is useful to everyone. Cheers. Dave FYI John H.: We are not a democracy but rather a representative democracy, which is a form of democracy. A direct democracy makes laws (and other government decisions) predominantly by majority vote. Some lawmaking is done this way, on the state and local levels, but it’s only a tiny fraction of all lawmaking.
  7. I would suggest you see a spine specialist. This report might be indicating that you have cervical and lumber nerve compression in your spine. See either a Neurosurgeon or Orthopedic Spine Surgeon. Don’t let the surgeon title make you nervous, they’re the experts in that area. Dave
  8. DaveN

    Early onset PD

    Sjrcle, With his age, he should definitely consider a DatScan. In addition to the clinical diagnosis, he would have something tangible that you can see which will reduce any doubt. If he's not seeing an MDS, then he needs to see one. Dave
  9. DaveN

    URSODIOL - A Potential New Drug for PD

    Fred, The article is nice and summarises UDCA/TUDCA. It should be noted that the article does show concern with those that have Diabetes and both UDCA and the supplement TUDCA should only be taken in concert with your doctor with strict monitoring. Maybe someday we’ll know more about this. As it stands, the article does not include anything new. Let’s see what happens with Prof. Bandmann’s clinical trial. It still has a long road to travel. Dave
  10. DaveN

    anxiety

    Normally, I'm a very level headed calm person, except when I'm driving :). I've been on Rytary since it was approved by the FDA. On a couple of occasions, maybe 4 or 5 times over the past couple of years, I've experienced extreme anxiety. The last time was an outburst on vacation with the family while I was looking for a parking spot. Needless to say my family wasn't pleased with my behaviour nor was I. It sucks when your not in control of yourself. I suspect that my Rytary dose hit me all at once rather than spread out over the 4+ hour period as usual. I see my MDS next month and will make a point to discuss this issue with him. Dave
  11. Sventory, I have Parkinson's, so my dopamine production is already compromised. I take Rytary every 4 1/2 hours to supplement my lack of dopamine. My doctor is more concerned about me injuring myself while sleeping. I'm not sure how you know I'm taking too much Melatonin. My doctor has recommended that I can go up to 10mg. I'm pretty sure that my doctor knows more about me than you and I will continue to listen to his advice. I'm not offended but will give a small bit of advice. Most MDS doctors work with their patients to devise a plan to provide the best care possible. Suggesting that you may know better may not always be taken well. Melatonin Dosing Recommendations: https://www.verywellhealth.com/how-to-take-melatonin-3015192 https://www.sleepassociation.org/sleep-treatments/melatonin/ https://www.healthline.com/health/melatonin-overdose#recommended-doses Higher doses are recommended for those with REM Behavior Disorder as noted in: https://www.verywellhealth.com/melatonin-can-treat-rem-behavior-disorder-3015212 Dave
  12. Sventory, Do you still swing your arms when you walk? How’s your sense of smell? I’ve read, don’t remember where, that long term use of melatonin can have the opposite effect on sleeping. I take 6mg of melatonin plus 100mg of trazadone on the weekends. To much trazadone and melatonin leave me hung over and fatigued the next day. I do take 50mg of trazadone on work nights. Many years ago my pain management doctor gave me some great advice about waking up in the night - accept that it happens and don’t stress over it. I find it easier to fall back asleep when I follow that simple rule. My MDS wants me to take the melatonin and full trazadone dose every night because I sleep walk and he is concerned that I will injure myself. It’s hard to work when you’re hung over every day. Dave
  13. Sventory, My rigidity crept up on me over several years. I really wasn't aware of it, just kept getting up earlier and earlier to get ready for work. My first real symptom was when my wife noticed that i didn't swing my right arm when I walk. We thought it was funny at the time and became a running joke for several years. I thought all my symptoms were just a part of ageing. If not for my wife researching Parkinson's for her mother, I'd probably be pretty miserable right now. Dave
  14. Sventory, Is your MRI of your spine or just your brain? It might be an issue with your spine. It couldn’t hurt to make an appointment with an Orthopedic spine specialist to be on the safe side. Parkinson’s normally presents on one side of the body before it progresses to the other. I was diagnosed a little over 4 years ago with symptoms dating back approximately 6+ years. My symptoms are still on one side only. I do not have the muscle tension/cramping that you are describing. It could also be some form of dystonia. Give the doctors a chance to figure out what is wrong before you start self diagnosing yourself. You’ll worry yourself sick and that won’t be helpful to your state of mind. Dave
  15. DaveN

    33m. Worried of YOPD

    Zero, You should be relieved that it’s not PD. I’m really happy for you. Get some help with your anxiety and see where that takes you. Go live your life because nobody knows what tomorrow brings. Dave
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