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PatriotM

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PatriotM last won the day on March 18

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About PatriotM

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  1. PatriotM

    Mired in Muck

    I agree with LAD. You do get to choose how you react to PD. If you sit at home, you'll only get worse - and quickly. My MDS always says 'live your life". He's a big believer in only taking the medication that you need and to just continue with life as normal. I am not a believer in the idea that a person with PD should take it easy and reduce stress. Reducing stress is another way of saying that you're not living life. Life is full of stress and if you have no stress, you have given up a lot of your life. It's like a war, there is only flak when you're over the target I've only been diagnosed for a little over 5 years, so I'm not the expert on all phases of PD. However, I do know that with any disease, you've got to stay active and keep living!
  2. PatriotM

    Anyone stopped by police? how did they treat you?

    I was stopped one time before I was taking medicine. I had a very noticeable tremor. The cop noticed my tremor and asked if I was nervous. I held up both hands and showed him that I only was shaking on the left side. I told him that I had PD and that was the end of it.
  3. PatriotM

    Struggling with family relationships

    The people in the healthy world are going to keep on moving. Our choice is to keep moving or be left behind.
  4. A cure is right around the corner - just as it has been for the last 50 years.
  5. I wonder if this is a one time treatment or if multiple surgeries would be required over time?
  6. PatriotM

    Sleep

    Have you tried marijuana? I would think that it would help with sleep.
  7. PatriotM

    Sleep

    Sounds like RBD. I've been having issues with RBD and find that Melatonin helps.
  8. PatriotM

    Medical marijuana?

    Medical marijuana helps with the symptoms, but there are drawbacks. For example, if you need to be admitted to the hospital, most (if not all) hospitals will not give you marijuana. Also, traveling can be a problem.
  9. In 2013, when this thread started, my UPDRS score was 42 without meds.. Now, 5 years later, my score is 32 with meds.
  10. PatriotM

    Lyme induced parkinsonism

    I got Lyme Disease in 1989. Lyme Disease didn't escape the Plum Island weapons lab until 1975, so it was relatively new in 1989 and certainly here in the Midwest. To make a long story short, I wasn't diagnosed for a LONG time and developed Chronic Neuro Lyme disease. It was NASTY and in many ways worse than PD. My neuro thinks that it's very possible that my PD was caused by Lyme. I didn't really start getting better until many years later when I discovered a MD/ND that specialized in Lyme Disease. She finally got it under control and I seem to be in long term remission at this point. Lyme disease is not a single infection. Ticks carry MANY infections and you have to beat them all to get better. There is a lot of discussion in Lyme Disease circles about Lyme being transmitted sexually.
  11. Try to realize that you're not the only one that is sick. How many people do you know that have a serious disease? I know a woman who lost her leg below the knee to diabetes. I know another that lost all the toes on his foot. I had a tenant that went to the doctor thinking that she had aches and pains, and was diagnosed with terminal cancer. She died a couple of months later. A guy at our Church got pancreatic cancer and died soon thereafter. A huge number of people are living with things more serious that PD. Being diagnosed with terminal cancer is something to be depressed about. PD, not so much!
  12. PatriotM

    I think I have parkinsons

    I agree with Dave N. It doesn't sound like Parkinson's.
  13. PatriotM

    Lyme induced parkinsonism

    Yes. In addition, the symptoms of PD and Lyme Disease are significantly different.
  14. PatriotM

    Lyme induced parkinsonism

    Yes, that's correct. One neurologist and one MDS both have diagnosed me with PD. I would be surprised if either one of them know anything about Lyme induced parkinsonism.
  15. PatriotM

    Lyme induced parkinsonism

    I had late stage, neuro Lyme for many years before being diagnosed with PD. My neuro thought that the Lyme Disease may have caused the PD. However, since no one really knows what causes PD, it's all just speculation.
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