Jump to content
helplinedonate

Dancing Bear

Members
  • Content Count

    221
  • Joined

  • Last visited

  • Days Won

    2

Everything posted by Dancing Bear

  1. Dancing Bear

    PD Guy - Shot Thru The Heart

    Purely comments on the physical/medical side of things....urologist said implants last resort and insurance coverage will be based on failure of other incremental efforts first. Cialis/Viagra in adequate dosages and then or in combination with pump appliance. PD brings larger intimacy issues and expectations to the forefront no doubt as discussed above.
  2. Dancing Bear

    HELP IN LAS VEGAS

    Donco13 I gather your insurance doesn't cover care at the Cleveland Clinic for Brain Health in Las Vegas. There is an MDS from Cleveland Clinic who went to Phoenix. I believe he is at the Barrow Institute. His name is Dr. Ryan Walsh. Hope this helps.
  3. Dancing Bear

    PD Guy - Shot Thru The Heart

    Will be seeing my urologist this week and will report back on the implants thing. My google search for info appears to point out that after cialis or viagra, the next step is to try the "suction pump" before the ultimate -- surgical implants which carry their own set of risks. For those with other conditions like BPH, ED may have been an issue before a PD diagnosis.
  4. Dancing Bear

    Bible Verses....

    Without any attempt to start a thread I post a periodic Bible verse that may be the source of some strength, comfort, or inspiration to my fellow "Parkies" in the best or worst of times as we deal with our challenges. Feel free to add a verse if you wish for those so inclined on this topic. It would be helpful if you mention what bible translation your verse is from if you do post. Have a great week. Romans 8:35-39 (KJV) Paul to the church at Rome Who shall separate us from the love of Christ? shall tribulation, or distress, or persecution, or famine, or nakedness, or peril, or sword? As it is written, For thy sake we are killed all the day long; we are counted as sheep for the slaughter. Nay, in all these things we are more than conquerors through him that loved us. For I am persuaded, that neither death, nor life, nor angels, nor principalities, nor powers, nor things present, nor things to come, nor height, nor depth, nor any other creature, shall be able to separate us from the love of God, which is in Christ Jesus our Lord.
  5. Dancing Bear

    PD is not the end

    Amen sister!
  6. Dancing Bear

    PD is not the end

    Agree with your sentiment. I have had a great life (not easy) filled with many blessings. Got my diagnosis at 61 but with slow progression I am still capable of doing many things. Just got back from a trip to help my brother out who has lymphoma. Who could have predicted our senior outcomes so to speak? I do the rock steady boxing program a few times a week and hit the elliptical trainer regularly. This past week I joined my 33 year old son in Memphis, TN at a predawn bootcamp style work out with 25 other relatively young guys-- 45 minutes of burpees, sit-ups, pushups, jumping jacks, windmills, and running. I hit several physical "walls" but finished the course in a pool of sweat. Doing that at sunrise with my son--priceless! Having no one suspect I had Parkinsons but was just a senior participant? That was exhilarating just to be one of the guys @ 64. yrs old. I have to keep challenging myself. Thankful each day, nothing taken for granted!
  7. Dancing Bear

    Social Security Disability...who has been denied w/PD?

    Thanks all for some great insights and info. After helping my 61 yr old brother put his SSDI application in these last 2 weeks for cancer, I must say that simply applying for regular retirement benefits at 65 in a few short months holds an attraction to me. My PD case is not severe enough I think (score about 12 on UPDRS) and I am not sure my MDS would support the effort in my case. Will take another look at the blue book info then decide.
  8. I am a slow progression tremor dominant case that would be considered mild relatively speaking and have some degradations to "executive function", attention span, apathy. My company long term disability runs out at the end of the year as I turn 65 with one year left to Social Security FRA at 66. I was thinking of applying for SSDI. Has anyone with a milder PD case applied for SSDI and been denied ? I guess I ought to ask who has been approved as well. Thanks in advance for any "case studies". DB
  9. Dancing Bear

    medicare coverage

    I am no insurance expert but might an insurance broker that deals in Medicare sups give you a better breakout? Just a thought if there is such a broker.
  10. Dancing Bear

    Bible Verses....

    Thanks Linda, I have heard it preached that for the faithful Christian, the last day on earth is truly the best day of their life because the passage from this imperfect sin sick world to an eternal life in heaven. Hard to get one's mind wrapped around the concept of eternity and perfection with the human mind. How is your summer going? Is your msg inbox full?
  11. Recently someone recommended a free book to me from the Phinney Foundation so I in turn highlight it here., "Every Victory Counts" is very comprehensive and downloadable in several electronic formats or in print. Helpful info on a variety of topics . Google it for the links to download.
  12. Dancing Bear

    Term Life Insurance -- Premiums?

    If anyone out there in forum land has been successful in obtaining term life insurance with Parkinsons as a pre-existing condition, could you share what companies you obtained the insurance from and approximately how much the premium Is (20 yr term or ?). Thanks DB
  13. Dancing Bear

    Social Security Disability...who has been denied w/PD?

    Thanks much all. Wrkjnky13 ...I sent you a message reference the pilot. Will probably try and give it a shot at applying for SSD. DB
  14. Dancing Bear

    Bible Verses....

    Happy Fathers Day to all Parkkies! May you be a great example to your kids (and grown children) in dealing with life's challenges large and small. The article below reminds us of the great responsibilities parents have from a biblical perspective. The Lord shows the way in his word. PARENTS, OBEY YOUR FATHER BY JASON JACKSON Children are the most vulnerable creatures on earth. In the Encyclopedia of Biblical and Christian Ethics, the following astute observation is found: Sadly, many are not nurtured successfully. Some are the consequence of procreative irresponsibility, and many more are left to rear themselves. Children are plugged into the social engineering of a godless pop culture. Adolescent sex symbols are encouraged and popular TV sitcoms represent a lifestyle of self-indulgence — an “ideal” bed-swapping environment in which the motto is, “Oh my God, let’s have a baby.” When Paul addressed a Greco-Roman culture in which child-rearing left much to be desired, he revealed a divine truth that transcends time. God’s plan for parents will always meet the needs of children — in any age and culture. Human wisdom does, however, find its way into the hearts of even Christian parents. Let us evaluate our thinking in light of God’s Word. Parenting God’s Way The apostle wrote, “Children, obey your parents in the Lord for this is right” (Eph. 6:1). In this clear statement, Paul conveys the divine will that there is a specific relationship between children and parents. Children are to obey their parents, because God has designed the home with this order. Children are those who need nurturing, for they are developing. They require instruction and correction (Eph. 6:4). Children are not peers at this stage. There is an authority—subjection relationship in God’s family plan. This authority is delegated by God, and a parent must exercise that authority with respect to God who gives it. No parent can demand, with intrinsic authority, this or that of a child. Too many parents act as if they are “the Creator” and the child is “the creature.” Parenthood is a gift from God (Ps. 127:3). And so, faithful parents exercise limited, God-given authority for a God-given purpose. Paul also taught that God’s domestic arrangement involves a special role for parents — authority in action. They must communicate instructions and the apply correction. Children are to listen and obey. Parents must assume the role decreed by God. They must provide instruction and correction, training their children in the nurture and admonition of the Lord (Eph. 6:4; cf. Matt. 15:19). When parents are not parents, children still grow up, but their spiritual development is compromised. Paul reminds us that the Christian family includes spiritual responsibilities. The parent-child relationship and the exercise of the parental role are designed by God to mature a person who is sensitive to spiritual realities — a person who accepts his own spiritual responsibilities. Children need to learn “what is right” (Eph. 6:1). They must learn that obedience to the Lord is the ultimate motivation for all behavior (Eph. 6:1). This is accomplished by parents who regularly teach their children to obey out of a sense of duty to the Lord. Obedience is not mere compliance. Obedience means listening and doing what is required for the right reasons. According to the Lord, this is best taught early. Wouldn’t you agree? So that we may help our children learn to obey the Lord from the heart — the seat of behavior — we must teach them obedience from the earliest of years. This spiritual quality is taught by the parents who: Give clear expectations, some of which are morally inflexible. Provide consequences to disobedience that are fair and clear. Show consistent follow-through with rewards and punishment. Demonstrate a concrete example in that parents themselves are obedient to the Lord. Parental responsibility means helping your kids go to heaven. It takes time, attention, and divine insight. Be there for your children. Be a Christian parent. REFERENCES Harrison, R. K. (editor). 1992. Encyclopedia of Biblical and Christian Ethics. Revised Edition. Nashville: Thomas Nelson. SCRIPTURE REFERENCES Ephesians 6:1; Ephesians 6:4; Psalm 127:3; Matthew 15:19 CITE THIS ARTICLE Jackson, Jason. "Parents, Obey Your Father." ChristianCourier.com. Access date: June 17, 2018. https://www.christiancourier.com/articles/1190-parents-obey-your-father ©1998 – 2018 by Christian Courier Publications. All rights reserved. ISSN: 1559-2235
  15. Dancing Bear

    Exaggerated Startle Reflex

    Hello Doctor Okun Can you educate us on this Myoclonic jerking issue? Is it part of the Parkinsons family of symptoms or a separate related malady?
  16. Dancing Bear

    Social Security Disability...who has been denied w/PD?

    Sounds like SSA has a view that if you can't do your current professional job that does not necessarily mean you are not able to do any job? Filing for Social Security Disability with a Parkinson’s Disease Diagnosis Under guidelines set forth by the Social Security Administration (SSA) in it's "Blue Book," Parkinson’s Disease is a condition that can qualify a person for Social Security Disability benefits provided that certain diagnostic criteria are met and documented whiich include: rigidity bradykinesia, or tremor in two extremities causing ongoing problems with movement gait, or ability to stand There is no single test that can provide a definitive diagnosis of Parkinson’s Disease. Diagnosis is based upon an evaluation of the symptoms present, as well as a neurological examination. Also, the presence of at least two of what are considered to be the “cardinal symptoms” of Parkinson’s (which are tremor, bradykinesia, and muscle rigidity) can be considered to be strongly indicative of the presence of the condition. Additionally, tremors of the hands that occur while the hand is at rest, symptoms that begin on one side of the body, and/or a positive response to levodopa (a standard Parkinson’s medication) are also telltale diagnostic tools. It can be assumed that these symptoms could be used as the basis for a Social Security Disability case on their own should they become serious enough to inhibit one’s ability to work. If the disease has progressed to this point, however, the patient has likely already qualified based on physical/motor symptoms.
  17. Dancing Bear

    Social Security Disability...who has been denied w/PD?

    Thanks Dan, I think I will not be severe enough by the criteria I have found through google searches today. Will just wait for FRA in one year. I have not even thought about VA since retiring from AF in 1997. DB
  18. Dancing Bear

    Bible Verses....

    A worthy read and reminder about God's love from a brother in Christ Marty Kessler who is a gospel preacher in Oklahoma. Have a great day! For my fellow Bible students..... The Bible teaches that we will all stand before the judgment seat of God. The very thought of standing before the one who knows me as I actually am, is terrifying, because I know I’ve done a lot of stupid, ungodly things for which I have no excuse. But I am not afraid. I am not afraid because of his son’s cross. “…..having forgiven us all our transgressions, having canceled out the certificate of debt consisting of decrees against us and which was hostile to us; and He has taken it out of the way, having nailed it to the cross”, Colossians 2:13-14 I am not afraid because he takes my weak, faltering faith and counts it as his own righteousness. “But to the one who does not work, but believes in Him who justifies the ungodly, his faith is reckoned as righteousness…..”, Romans 4:5 I am not afraid because God loves me in spite of my past. His love for me is not dependent on me being good, because I can’t. Instead, his love is based solely on his eternal goodness, and therefore completely reliable. “And we have come to know and have believed the love which God has for us. God is love, and the one who abides in love abides in God, and God abides in him. By this, love is perfected with us, that we may have confidence in the day of judgment; because as He is, so also are we in this world. There is no fear in love; but perfect love casts out fear, because fear involves punishment, and the one who fears is not perfected in love. We love, because He first loved us”, 1st John 4:16-19. Life without fear is freedom.
  19. Dancing Bear

    sleep apnea and cognative decline in pd

    Been on CPAP since 2014 myself. Did you change your pressure setting on your own or as a result of a new sleep study? What is myoclonus? Leg twitches while in bed?
  20. Dancing Bear

    Bible Verses....

    The resurrection of Jesus Christ from the dead is the foundation of the Christian system and is reflected on weekly by Christians. It is not an annual celebration/rememberance reserved just at Easter as some may practice. Jesus Christ's victory over death and our assurance that physical death is not the termination of human existence is indeed a cause for joy and strength. The Lord was the only perfect passover sacrifice suitable for forgiveness of our sins. A read of John 20 refreshes us on the Lord's resurrection (NASB) The Empty Tomb 1Now on the first day of the week Mary Magdalene came early to the tomb, while it was still dark, and saw the stone already taken away from the tomb. 2So she ran and came to Simon Peter and to the other disciple whom Jesus loved, and said to them, “They have taken away the Lord out of the tomb, and we do not know where they have laid Him.” 3So Peter and the other disciple went forth, and they were going to the tomb. 4The two were running together; and the other disciple ran ahead faster than Peter and came to the tomb first; 5and stooping and looking in, he saw the linen wrappings lying there; but he did not go in.6And so Simon Peter also came, following him, and entered the tomb; and he saw the linen wrappings lying there, 7and the face-cloth which had been on His head, not lying with the linen wrappings, but rolled up in a place by itself. 8So the other disciple who had first come to the tomb then also entered, and he saw and believed. 9For as yet they did not understand the Scripture, that He must rise again from the dead.10So the disciples went away again to their own homes. 11But Mary was standing outside the tomb weeping; and so, as she wept, she stooped and looked into the tomb; 12and she saw two angels in white sitting, one at the head and one at the feet, where the body of Jesus had been lying. 13And they said to her, “Woman, why are you weeping?” She said to them, “Because they have taken away my Lord, and I do not know where they have laid Him.” 14When she had said this, she turned around and saw Jesus standing there, and did not know that it was Jesus. 15Jesus said to her, “Woman, why are you weeping? Whom are you seeking?” Supposing Him to be the gardener, she said to Him, “Sir, if you have carried Him away, tell me where you have laid Him, and I will take Him away.” 16Jesus said to her, “Mary!” She turned and said to Him in Hebrew, “Rabboni!” (which means, Teacher). 17Jesus said to her, “Stop clinging to Me, for I have not yet ascended to the Father; but go to My brethren and say to them, ‘I ascend to My Father and your Father, and My God and your God.’” 18Mary Magdalene came, announcing to the disciples, “I have seen the Lord,” and that He had said these things to her. Jesus among His Disciples 19So when it was evening on that day, the first day of the week, and when the doors were shut where the disciples were, for fear of the Jews, Jesus came and stood in their midst and said to them, “Peace bewith you.” 20And when He had said this, He showed them both His hands and His side. The disciples then rejoiced when they saw the Lord. 21So Jesus said to them again, “Peace be with you; as the Father has sent Me, I also send you.” 22And when He had said this, He breathed on them and said to them, “Receive the Holy Spirit. 23“If you forgive the sins of any, their sins have been forgiven them; if you retain the sins of any, they have been retained.” 24But Thomas, one of the twelve, called Didymus, was not with them when Jesus came. 25So the other disciples were saying to him, “We have seen the Lord!” But he said to them, “Unless I see in His hands the imprint of the nails, and put my finger into the place of the nails, and put my hand into His side, I will not believe.” 26After eight days His disciples were again inside, and Thomas with them. Jesus came, the doors having been shut, and stood in their midst and said, “Peace be with you.” 27Then He said to Thomas, “Reach here with your finger, and see My hands; and reach here your hand and put it into My side; and do not be unbelieving, but believing.” 28Thomas answered and said to Him, “My Lord and my God!” 29Jesus said to him, “Because you have seen Me, have you believed? Blessed are they who did not see, and yetbelieved.” Why This Gospel Was Written 30Therefore many other signs Jesus also performed in the presence of the disciples, which are not written in this book; 31but these have been written so that you may believe that Jesus is the Christ, the Son of God; and that believing you may have life in His name.
  21. Dancing Bear

    Do any of you here sleep - I get little or none

    I have mild sleep apnea and use CPAP. Diagnosed around the time of PD diagnosis. Slept well until last few months when I would wake up around 3 am and have hard time going back to sleep. MDS recommended trying Melatonin in a 5mg dose first for a week, then 10 mg if need be. If that did not work then I am to try 1 cap of Rytary and see if that helps. Melatonin in a 5mg tab seems to work for me so far. (Last dose of Rytary is around 5pm). No ill effects. Deeper sleep will produce more dreams I think.
  22. Dancing Bear

    Bible Verses....

    https://www.christiancourier.com/articles/971-biblical-concept-of-atonement-the THE BIBLICAL CONCEPT OF ATONEMENT BY WAYNE JACKSON The English word “atonement” derives from an Anglo-Saxon term which, practically speaking, signifies “a making at one.” Though the English term “atonement” is common to the Old Testament, it is found only once in the New Testament (Romans 5:11 KJV). There the original term katallage is better rendered “reconciliation” (ASV; cf. also 2 Corinthians 5:19). The Greek word denotes the “reestablishment of an interrupted or broken relationship” (F.W. Danker, et al. 2000. Greek-English Lexicon. Chicago: University of Chicago. 521). In the biblical context, atonement has to do with the plan employed by the Lord to provide a way of salvation for sinful humanity by means of the redemptive mission of Christ. Here are the basic facts. (1) God is a perfectly holy Being (Isaiah 6:3; Revelation 4:8); sin, therefore, is contrary to his very nature (James 1:13). As a truly holy Being, the Lord cannot ignore sin, or tolerate wickedness indefinitely, in any form (Habakkuk 1:13). (2) Jehovah is also a God of justice. It is the very foundation of his rule (Psalm 89:14). Accordingly, some satisfaction for sin must be made. The principle is this: “The wages of sin is death” (Romans 6:23). (3) If, therefore, man was to be redeemed, God would have to extend mercy (cf. Ephesians 2:4) in some fashion whereby divine justice could be satisfied. Exactly how was that to be achieved? A “death” would be required to remedy the problem (Hebrews 9:22). (4) The solution is realized in the gift of Christ. Jesus lived the sinless life (John 8:29; Hebrews 4:15; 1 Peter 2:22), and therefore became qualified to function as a substitute offering on man’s behalf (cf. Hebrews 5:8-9). Through Jesus’ death, Heaven’s requirement of justice is satisfied (see Isaiah 53:11; Romans 3:22ff). Hence, the atoning offering of the Son of God became available to all men (Isaiah 53:6; John 3:16; 1 Timothy 2:4; 2 Peter 3:9 (5) Jesus is the author of eternal salvation to all who obey him (John 3:36; Romans 6:17-18; Hebrews 5:8-9). One is reconciled to God when he, through obedience, accepts Christ as his “atonement” offering. SCRIPTURE REFERENCES Romans 5:11; 1 Corinthians 5:13; Isaiah 6:3; Revelation 4:8; James 1:13; Habakkuk 1:13; Psalm 89:14; Romans 6:23; Ephesians 2:4; Hebrews 9:22; John 8:29; Hebrews 4:15; 1 Peter 2:22; Hebrews 5:8-9; Isaiah 53:11; Romans 3:22; Isaiah 53:6; John 3:16; 1 Timothy 2:4; 2 Peter 3:9; John 3:36; Romans 6:17-18 CITE THIS ARTICLE Jackson, Wayne. "The Biblical Concept of Atonement." ChristianCourier.com. Access date: March 10, 2018. https://www.christiancourier.com/articles/971-biblical-concept-of-atonement-the
  23. Dancing Bear

    Just Interesting Things about This and That

    Hi Linda......can't send you msg. Is your inbox full?
  24. Dancing Bear

    Bible Verses....

    Avbunyan, thanks for the reminder of the value of suffering from a Biblical perspective. If we are to be Christ like in the world, then Christ provided the perfect example in suffering for the sins of all mankind in all generations. In today's world we are reminded by the news media that there are Christians around the globe that suffer greatly for their faith, even to death. Our circumstances in this country are not so harsh in life and death persecution for one's faith but will it remain that way in the decades ahead? Separate Topic.. Museum of the Bible in Washington DC. Have you heard of it? It will be on the agenda for my next DC visit. Check it out at museumoftheBible.org Have a great Lord's Day!
  25. Dancing Bear

    Life Insurance Qs

    Planning on keeping my policy and just reducing death benefit / premium if nothing else new is possible. They cant kick me out.👏🏻
×