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SherryKnuth

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SherryKnuth last won the day on October 21

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About SherryKnuth

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  1. SherryKnuth

    How does the Mask begin?

    Dianne, I wish I could have set across the table with you with a cup of tea and had a conversation with you when I was diagnosed almost 5 years ago. I struggled with my diagnosis until I came to terms with it, but it took a good minute. Thank you for your kind, assuring words to Barbara B. I always appreciate your posts.
  2. SherryKnuth

    Tremor

    Parkinson disease does not have " one size fits all" symptoms. I do not always have a resting tremor. Time of day, stress, tiredness are all factors for my tremors but each day is different for me. I am almost five years from my diagnosis and am 58. I function fairly well with Rytary 3x a day and and 1/2 tab of carbo/levo twice a day. Hope this encourages you.
  3. SherryKnuth

    curling of toes

    GURUTEGH, Toe curling could be dystonia which is a painful cramping of the muscles. You can get Botox shots to alleviate the cramping. Hope this helps.
  4. SherryKnuth

    Considering Botox--Your Experience?

    I have been getting Botox injections for about a year now for foot dystonia. The results are different for everyone. The Botox helped some of the foot dystonia but not 100%. I would recommend it as some relief is better than none. My MDS coded it focal dystonia. My insurance paid for it after I met my deductible. Ask your MDS about a rebate check from the Botox company. You submit claim along with EOB insurance sheet online. You are able to do this for the amount your insurance does not pay. I have received two checks from the Botox company. I have now met my deductible so I can no longer apply for a rebate check. !-800-44-BOTOX The Botox Company is Allergan.
  5. SherryKnuth

    Rytary losing it's effectiveness?

    Thank you for your advice. I only take one Rytary per dose in addition to the 1/2 tab. of carbo/levo. Will these two meds together not break down well enough in my stomach to achieve the needed therapeutic level?
  6. I take Rytary 48.75mg./195 mg three times a day . I also take Effexor 37.5 mg. I have begun to experience off times in the morning and evening. My MDS added carbo/levo 25-100 mg 1/2 a tab in the morning and another 1/2 tab in the evening. It has has helped. My question is should I consider taking Sinemet ER instead of the Rytary and additional carbo/levo? It seems like a lot of carbo/ levo. Should I be concerned about the dosage of the Rytary and carbo/levo? Unfortunately I experienced dyskensia with the Rytary and the additional carbo/levo has increased it. But I suppose it is the trade off for relief for off times. Thank you for your advice.
  7. SherryKnuth

    Rytary vs. Sinemet ER

    I was taking carbo/levo 25/100 4x a day. I was experiencing some dyskensia so my MDS put me on Rytary 36.25mg/145 mg 3 x a day for less dyskensia. I have been having increased stiffness esp in my neck. She suggested I bump it up to 48.75/ 195 mg 3x a day. My primary dr. took me off Fosamax thinking it was causing the stiffness. But it persists. Currently my insurance is paying for the Rytary till January. Would I do okay on Sinemet ER? My concern is the cost. Is Rytary similar to Sinemet ER? Amanadine was suggested to add with my carbo/levo to lessen dyskensia so I opted for the Rytary. I, also, take Effexor 37.5 mg 1 x a day. It really blunts my emotions. Any suggestions on another drug? It is effective on stabilizing my moods, but I have almost zero emotions. I have no emotional outlet it seems and it can't be healthy. Thank you for your help.
  8. SherryKnuth

    Dex scan

    I was diagnosed with osteoporosis via a dex scan. My doctor is recommending that I take something like Prolia. I take carbo/levo 25/100 mg. What course of treatment would you recommend? Thank you for your input.
  9. SherryKnuth

    Too much carbo/levo?

    My neurologist took me off pramipexole and put me on sinemet 25/100. 3 x daily. It has helped me a great deal with balance and rigidity. However, in the last month or so, I have begun to compulsively lick my lips and have increased drooling. Could I be getting too much C/L?
  10. You are correct on the statement," morality has allowed humans to exist and survive quite well." Would you elaborate on your definition of morality? We are all born with an innate ability to know right from wrong. If morality exists, then immorality does, too. Would it be plausible to say that the root cause of decimation of morality is the immoral actions of man who tout religious dogmas? Thus God and christianity gets the brunt for man's self centered actions.
  11. On the topic of satan. He comes with questions! Like in the Garden of Eden he tried to get Adam and Eve to doubt when he asked, "Has God indeed said 'You should not eat of every tree of the garden'?" Genesis 3:1 He is the author of confusion and he tries to get us to doubt God's Word, However, God comes with authority! He declared to Moses, " I AM WHO I AM sent you." ( Exodus 3:14 When Moses asked, " Who shall say sent me ?) I believe those of us who have PD or have a loved one suffering from it get caught off guard some days with the evil one's lies and schemes. He tries to get us to doubt God's love and goodness. But i pray each one of us will stand on God's Word that He will never leave nor forsake us. Hebrews 13: 5 Yes, there are some days that are real difficult! But praise God we can rest in Him. I'm not sure who this message is for but know that God can not lie and He loves you and finds you valuable! Don't give up!
  12. SherryKnuth

    Pramipexole vs Sinemet

    Mark, I have been on Pramipexole for three years now. Dose is 0.75 3x daily. Rigidity, slowness,etc has increased and I think it may be time for Sinemet. I do not wish to increase Pramipexole as it has caused water retention and compulsive eating. My question is what can I expect in general when I switch meds? Benefits, side effects? Dosing recommendations? Thank you, I hope you and your family have a wonderful Labor Day weekend!
  13. SherryKnuth

    Vertigo

    I have been suffering from what appears to be Benign Paroxysmal Positional Vertigo. What can be done about it? I take Pramipexole 0.75 mg 3X a day.
  14. SherryKnuth

    Dystonia

    I have been struggling with dystonia, I take a low dose of Pramipexole.. My MDS suggests Baclofen. What is your opinion of this med? I am holding off on taking Sinemet as long as I possibly can. Are there new drugs on the horizon?
  15. SherryKnuth

    She Said Psychogenic and I Shouted.

    Somazzy, I wish I could sit across the table from you and share that pint of ice cream with you. I would cry and grieve with you and tell you I understand. I may not be there physically but I am certainly there in spirit. Please know that you are in my prayers. Take each day as it comes. Try not to think too far ahead..it only makes you anxious. You can do it, Somazzy! Sherry
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