Jump to content


  • Content Count

  • Joined

  • Last visited

  • Days Won


SoCalGal last won the day on May 30 2017

SoCalGal had the most liked content!

Community Reputation

23 Excellent

About SoCalGal

Profile Information

  • Gender
  • Location
    Los Angeles

Recent Profile Visitors

1,428 profile views
  1. SoCalGal

    Struggling with family relationships

    Hi Gardener, I was diagnosed in 2014 and am tremor dominant. To me the worst thing about pd is definitely the fatigue. I also just keep going. I think the Sinemet adds to the fatigue. About 20 minutes after a dose I start yawning. I don’t know the solution to this so I just keep going. We are supposed to go on a cruise to South America in February . I have mixed feelings about doing this because of the fatigue. We will have to see. But I am not giving in to this as long as I can! Best wishes, Lorraine
  2. SoCalGal


    Thanks for the info. Hope to get to the bottom of this soon. It has been very hot here in LA and that doesn’t help . Hydration definitely a must
  3. SoCalGal


    Hi all, for the last few weeks I have been dizzy. I know sinemet can cause dizziness but I have been on it for 4 years now since diagnosis. I didn’t have this until now. Had a neuro appt and I told him and he said the disease can cause it. Then he took my blood pressure and it was 98 over 70!! I was floored because at the doctors office it usually is in the 140 range. Now he wants an mri of my brain and an ultrasound of neck to see if blood is getting to my brain and also an echo of my heart. Yikes! Anyone else have dizziness? Thanks, Lorraine
  4. SoCalGal

    Good morning!!

    My best wishes that things go well for both of you. Lorraine
  5. SoCalGal

    Anxiety causing tremors and off time

    Tweets, your post could have been written by me. I have many of the same problems. I am tremor dominant. I am on a low dose of sinemet. 25/100 at 6, 11, and 4. Tremors come after about 2 to 3!1/2 hrs. When the tremor comes I get anxious and so I shake more. I probably should up my sinemet but don't want to because I don't have too many other symptoms. My mds at ucla says she doesn't want to chase the tremor with more Meds. Anxiety definitely makes my tremor worse. I try to stay active. Tremors much worse when sitting and not moving. Had a root canal on Tuesday and was really anxious about it. Turned out not so bad. Tremor was awful in days right before. Breathing exercises help but not always. Have to try and stay calm! Good luck. Lorraine
  6. SoCalGal

    Good morning!!

    Be kind to yourself
  7. SoCalGal

    Tremor when nervous?

    The exact same thing happens to me. Whether it's my husband driving too fast, or an exciting football game that my team is losing, whatever the situation if I'm stressed I shake crazy. In the next month I am having root canal and a colonoscopy. Shake, rattle and roll!!!
  8. SoCalGal

    “On” when I should be “off”

    Hi Sunbird,. I take my last dose of 25/100 sinemet at 4. I have some tremors in the evening but not much else. When I get in bed at 10 my tremors really lessen even though I am not asleep. No problems when I wake up several times at nite. I take my morning dose at 6 but really don't feel "off". Don't understand why i don't have any Meds for 14 hours but don't have a problem. Lorraine
  9. SoCalGal

    Good morning!!

    jb, please know that your posts do add so much to this forum in a positive attitude. I have read so many of your observations and great stories and when I am feeling a bit down, they lift me up! The very best to you. Lorraine
  10. SoCalGal


    Oops. Posted in wrong forum. Sorry
  11. SoCalGal


    Hi all,. I recently switched from Azilect to generic Rasagaline. I seem to feel dizzy a lot. I take 25/100 sinemet 3 x day. Been taking sinemet for about 3 years since diagnosis. Wondering if the Rasagiline is causing it. Also feel a little nauseous sometimes. Anyone else have this problem? Hope you all are doing well. Lorraine
  12. SoCalGal

    Good morning!!

    That was terrific. You should be so proud of your son. Loved the lyrics! Lorraine
  13. SoCalGal


    Thanks Linda,. That music was lovely and so relaxing. Lorraine
  14. SoCalGal


    Hi Dr. Okun,. I have recently switched to generic Azilect called Rasagiline due to cost. The open forum has a lot of negative posts on Rasagaline. Is it that different than Azilect? Thinking I should stick with Azilect. Are side effects worse? Haven't started it yet. Thanks for your help. Lorraine
  15. SoCalGal

    Good morning!!

    Hi Pathfinder,. We saw Baby Driver too and liked it. Sound tract was great. We are both in our 70's and our kids couldn't believe we liked all that action and loud music! Told them we're not dead yet:)!!!