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MusicMan

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MusicMan last won the day on August 11 2018

MusicMan had the most liked content!

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About MusicMan

  • Rank
    MusicMan
  • Birthday 08/05/1956

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  • Gender
    Male
  • Location
    : Lakewood Ranch, Florida
  • Interests
    Playing music, eating, avid reader of fiction (Nelson DeMille, John Sandford, Michael Connolly, Lee Childs, etc)

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  1. MusicMan

    good news

    Sorry to reply so late...I don't come on here too much. I meant, don't expect much from Dr Okun...he seems to have his own agenda. Yes, I'm still doing well. I'm progressing a bit, but overall have very little to complain about. Still having fun and living life.
  2. MusicMan

    good news

    Don't expect much....
  3. I just have the feeling that I've been lucky so far, but when PD rears it's ugly head to me, it's gonna be hard and mean! At this point, I don't even think about driving with PD. I just wonder if, one day, it's gonna be like a light switch was hit, and I won't be able to drive.
  4. Actually, yes I can and still do
  5. Actually, wifey uses her car for her business, so I don't want to be stuck at home with no car.
  6. Hello all. I am 4-1/2 years into a PD diagnosis, still probably Stage 1, and I have a few questions regarding driving for the PD veterans (at least 5 years since diagnosis) on this forum. Currently, I do the vast majority of the driving between my wife and I. She is 5 years younger, with no health issues, but I just prefer to do the driving if we go out. Even trips, such as the 8 hours on the road to Savannah, or to the mountains, etc. I even drive when we go out at night to restaurants, bars, or parties. She also prefers that I drive. I say this because I have no driving issues yet, even tho I'm taking sinemet for tremor and some stiffness. I'm 62 and never had an accident, and consider myself a damn good driver. Anyway, my question is this: 1. When you realized you finally had to quit driving, was it a sudden thing, or did it kinda creep up on you over a long period of time? 2. Who has been driving for 10 years or more with a PD diagnosis? I have a 2012 Lexus, which I really love. I'm trying to decide whether to just keep this car for as long as I am able to drive, or trade it in on a new car. I hate to trade a nice, paid off car, for a new one if 2 years from now I am not able to even drive....that would be a big waste of money. But if I am possibly able to drive for another 5 or so years, then it might be worth it. Before anyone asks, my wife has her own brand new car, so she doesn't really enter into the equation. Thanks for any advice or info you all can give me. Bob
  7. I stopped taking it, based on the negative news...
  8. I backed away when they wanted to do 3 spinal taps over a 9 month period. Yikes! Even those on the placebo would be getting the spinal taps.
  9. Has anyone here been a participant in the Nilotinib trial? According to UF, some have already participated in the 2nd trial and have finished the 9 months either on 300 mg, 150 mg, or the plaebo. If anyone has, can you give us your impressions.
  10. I also often have fatigue, but I do tend to rally when I have to. I seem to always expect to have trouble, but once I'm engaged in an activity or trip I seem to do okay.
  11. Don't know about that. I've had an easy, wonderful life. So fantastic that, when I got Parkinson's at 58, I said..."okay, that's a fair trade for having 58 wonderful years beforehand".
  12. I was diagnosed 4 years ago. Been having a pretty good time since....
  13. This is interesting. Unblocking the mitochondria buildup is what Niagen is supposed to do https://parkinsonsnewstoday.com/2018/08/03/mitochondria-transport-disruption-causes-parkinsons-study/?utm_source=PAR+E-mail+List&utm_campaign=5a1e1ce152-RSS_WEEKLY_EMAIL_CAMPAIGN_DAILY_US&utm_medium=email&utm_term=0_62dd4fb5e3-5a1e1ce152-72025897
  14. I see you are taking 250 mg of niagen 3 times a day. The dosing I saw was for 250 mgs ONCE a day. You may be taking too much, and too much of most B vitamins can be bad.
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