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MusicMan

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MusicMan last won the day on August 11

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About MusicMan

  • Rank
    MusicMan
  • Birthday 08/05/1956

Profile Information

  • Gender
    Male
  • Location
    : Lakewood Ranch, Florida
  • Interests
    Playing music, eating, avid reader of fiction (Nelson DeMille, John Sandford, Michael Connolly, Lee Childs, etc)

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  1. MusicMan

    Struggling with family relationships

    I also often have fatigue, but I do tend to rally when I have to. I seem to always expect to have trouble, but once I'm engaged in an activity or trip I seem to do okay.
  2. MusicMan

    PD is not the end

    Don't know about that. I've had an easy, wonderful life. So fantastic that, when I got Parkinson's at 58, I said..."okay, that's a fair trade for having 58 wonderful years beforehand".
  3. MusicMan

    PD is not the end

    I was diagnosed 4 years ago. Been having a pretty good time since....
  4. MusicMan

    Vitamin B3 ????

    This is interesting. Unblocking the mitochondria buildup is what Niagen is supposed to do https://parkinsonsnewstoday.com/2018/08/03/mitochondria-transport-disruption-causes-parkinsons-study/?utm_source=PAR+E-mail+List&utm_campaign=5a1e1ce152-RSS_WEEKLY_EMAIL_CAMPAIGN_DAILY_US&utm_medium=email&utm_term=0_62dd4fb5e3-5a1e1ce152-72025897
  5. MusicMan

    Vitamin B3 ????

    I see you are taking 250 mg of niagen 3 times a day. The dosing I saw was for 250 mgs ONCE a day. You may be taking too much, and too much of most B vitamins can be bad.
  6. MusicMan

    insomnia

    I somehow survive on about 5 hours of sleep per night, and have for a very long time. I might awaken a 4 am, but I lay in bed calmly and have relaxing "dream-thoughts" and pass the time away until 6 or so. I go to bed at 11 pm and get up at 6 am, regardless of whether I'm asleep the whole time or not...I just don't worry about it.
  7. MusicMan

    Vitamin B3 ????

    Maybe I missed it, but there doesn't seem to be much discussion about the report on vitamin B3 and it's effect on PD. To me, it seems pretty remarkable that it may be greatly beneficial, but there's not much buzz... https://parkinsonsnewstoday.com/2018/06/12/vitamin-b3-may-prevent-motor-decline-parkinsons-study/?utm_source=PAR+E-mail+List&utm_campaign=c90727791f-RSS_WEEKLY_EMAIL_CAMPAIGN_DAILY_US&utm_medium=email&utm_term=0_62dd4fb5e3-c90727791f-72025897
  8. Hey Musicman,

    What Lee Child's book are you reading now. I just finished Night School. 

    -S 

  9. MusicMan

    10 good years???

    Probably the "10 good years" is an average based on ALL PD patients. Many aren't diagnosed until age 75 or so, and are already on the decline in general. 10 good years for them would be great! Remember, the average of 100 people age 75 who get 2 good years and 100 people 40 years old who get 20 good years is.....11! So, don't sweat the numbers. Exercise and stay positive.
  10. MusicMan

    Shot in the dark

    Start with a neurologist. For maybe $200 he/she can give you some insight on whether you should be worried or not.
  11. Diamond joins Linda Ronstadt as another celebrity with Parkinson's https://www.nytimes.com/2018/01/23/arts/neil-diamond-retires-parkinsons.html
  12. MusicMan

    PROTEIN WITH RYTARY

    I don't understand the difference between Rytary and regular extended release sinemet???
  13. MusicMan

    inhaled levadopa

    I've read that your body needs acid to activate the sinemet, and that taking things like Zantac, Tums, Pepcid, etc negates the absorption of levadopa. If that's not true, I'd love to know so I can take Zantac too!!!!
  14. MusicMan

    Trying Sinemet

    There's no "cut and dried" treatment for PD, but I think it wouldn't hurt to add it at the same time. I think it has slowed down MY progression, but can't prove it...
  15. MusicMan

    What drugs? supplements like inisine?

    I would highly question anything that says Azilect may cause you to fall asleep while driving. Ridiculous....
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