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Linda Garren

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Everything posted by Linda Garren

  1. Linda Garren

    Lymes Disease Mimics PD Symptoms

    P.S. What a beautiful way you expressed your faith in your above post.
  2. Linda Garren

    Lymes Disease Mimics PD Symptoms

    I haven't yet had the Lyme (no "s" on Lyme, just FYI) test because it has been so discouraging and time consuming to try to deal with, and I can barely keep up with seeing all the docs for other things I have. It's been very, very, very difficult. if I eventually find a Lyme specialist, I'll surely let you now. I take 50/200 Sinemet 5 times a day (every 4.5 hours). It has worked out well. I started on a lower dose. as your son would most likely be. Not everyone reacts to the meds offered in the same way, so the MDS would work with your son over time to find the best dosage of Sinemet and add or switch to other meds that might help him, depending on his response to Sinemet. Some MDS's will give a Sinemet "challenge," having their patient take a low dose of SInemet and wait a little bit to see if helps their symptoms or not. That has seemed to help a number of people quickly be diagnosed. I also deal with clinical depression, so I take meds for that (Wellbutrin and Cymbalta, the combination of which has been perfect for me for years), and I have had trouble sleeping, so I take 10mg Melatonin and .5mg Xanax each night. It has worked perfectly. I also have Polycythemia Vera and take a chemo pill for that daily. My MDS stresses the importance of having an adequate amount of copper in our bodies because it helps our nerve connections.. I'm sorry that I can't think how else to explain what it does (brain fog this morning), but you could look it up on line as to how it has been found to be very important for Parkies. Does your son have at trouble getting to sleep at night, and does he have dreams where he wakes up finding that he has been physically acting out the dream? Does he have times when his muscles tense for no reason (restless leg, restless body syndrome)? That is another frequent symptom of PD. Does he have balance issues? Does he misjudge when to turn down a hall or through a door when he is walking toward it and ends up walking into the wall instead, shortly before getting to the hall/doorway? There are so many things that I've found that are actually humorous that are symptoms of PD, that being one that always made me laugh. With Sinemet, I don't do that any more.
  3. Linda Garren

    Good morning!!

    Thanks for thinking of us and for the encouragement, jb. The hurricane has slowed to 5 mph, a good thing except for the fact that it will mean a lot of flooding--and over a very large area. I keep watching the reports to see if it's sneaking up to the Chesapeake Bay which goes right up the middle of our tiny little squinched state (which doesn't seem so little except looking at it on a map where it can hardly even be seen). BUT...farther up the Bay, in what is now the Baltimore Harbor, is where our National Anthem was penned by Frances Scott Key while a prisoner on a ship just off shore when he looked out and saw our flag raised the next morning signaling our victory.* So I guess sometimes good things come in small packages. We're small, but we count.** *204 years ago this evening, on Sep. 13, 1814, at the "twilight's last gleaming" at Fort McHenry, Francis Scott Key proudly hailed the star spangled banner. It was famously still waving the next morning. It still waves--and the republic for which it stands still stands--today.* (Bill Kristol) The War of 1812 was a conflict fought between the United States, the United Kingdom, and their respective allies from June 1812 to February 1815. Historians in Britain often see it as a minor theatre of the Napoleonic Wars; in the United States and Canada, it is seen as a war in its own right. (Wikipedia) **Besides, which, the Maryland countryside is just beautiful (and horse country), and the crab cakes at little crab shacks and places of fine dining around the areas of the harbor and bay are especially scrumptious! Interestingly, too, the northern part of Maryland was Union, and the Southern part was Southern. Those traits and traditions still seem to hold even today in many ways.
  4. Linda Garren

    Early onset PD

    Hi, Sjrcle. You're in a good place with people having had a lot of experience and information to offer from their journeys with PD. I'm sure they'll be posting. They're a very caring and supportive group. It may be that because it's a Friday and also because a lot of us have our eyes on the news regarding the hurricane and the ongoing confirmation process of Brett Kavanaugh that there are not more posting today. I can offer one of the very most basic and important things to be sure to do as you search out a diagnosis for your son. That is to be sure the physician he is seeing is a Movement Disorders Specialist in a neurology department connected with a reputable research university, If you let us know where you live, perhaps some can give some suggestions. I live in Baltimore, MD, and see an excellent MDS at Johns Hopkins. It's worth a wait in order to get him an appointment with an MDS if you have to (there are not yet enough MDS's to go around to take on the quickly growing Parkinson's Disease patients, so that's why there can be a little wait). MDS's are in training toward the specialty, though, so that's an encouraging thing to know. All the best to you and your son. Linda
  5. Linda Garren

    Lymes Disease Mimics PD Symptoms

    Since I have a Lyme-related condition rather than Lyme itself (for instance, I don't have joint pain or racing heart), it is hard to say. A person definitely diagnosed with Lyme would be better able to answer that. I do know that there are some people with my Lyme-related condition who also have Parkinson's. Perhaps when you find a Lyme-related doctor, he/she will be able to answer your question better. Be aware that some of the docs that may be recommended to you may be "iffy," so it's very important to do a search on ratings and reviews of any recommended to you. I didn't go to any that were recommended to me after reading about them. There is one at Johns Hopkins that I have been thinking of contacting that I would feel very good about, but I don't know yet if he sees people in clinic or is mainly a researcher. Either way, I think he could be a wealth of information. I have so much else going on medically that I've put it off. Was just in the hospital for several days due to abdominal bleeding, another issue. if I didn't have faith in the Lord that He is in control and has a reason for these things, it would be much, much more difficult to handle my feelings emotionally. He has lovingly provided so much that all I can do is thank Him every day. :-)
  6. Linda Garren

    Lymes Disease Mimics PD Symptoms

    Look on line for IGeneX Labs in California. They will send you a kit that you take to any lab to have your blood drawn and then sent back to IGeneX to test. They are one of the best labs to get more accurate results than most. You'll need to find a Lyme-literate doctor. Be sure they are Lyme literate, or you''ll just waste your time and money. There are Lyme Organizations on line that can help you. Don't go to the LDSA. ILADS is the more up-to-date organization for Lyme Disease information. I'll be doing the same testing at some point, too, as I have a Lyme-related condition in addition to PD. Best wishes to you-- https://igenex.com/order-a-test-kit/
  7. Linda Garren

    anxiety

    Hi, Lad. I'd love to know the breathing technique if it helps a lot.
  8. Linda Garren

    PD is not the end

    Enjoyed reading your post, DB. Always nice to get time to be with family.
  9. Linda Garren

    PD is not the end

    https://parkinsonsnewstoday.com/2018/08/08/parkinsons-disease-i-want-to-be-smooth-stone/?utm_source=PAR+E-mail+List&utm_campaign=a60bd708ca-RSS_WEEKLY_EMAIL_CAMPAIGN_DAILY_US&utm_medium=email&utm_term=0_62dd4fb5e3-a60bd708ca-71888821
  10. Linda Garren

    FDA Approval process for Medical Devices

    Wow, Kevin. This is such important information. I hope everyone reads it.
  11. Linda Garren

    Bible Verses....

    The Holy Spirit's Power and Presence in Times of Crisis January 11, 2011 by Colleen Swindoll Thompson Are you going through a severe test? Maybe you have lost your appetite or you haven’t slept well for weeks or months. Fear and panic have replaced quietness and peace. You experience loneliness, discouragement, and isolation, complicated by unending physical or emotional pain. You’ve prayed and asked others to pray as well. And still, there is no relief. I experienced this kind of gnawing disquiet several years ago. I was enduring not one but several significant trials, which intensified weekly. On one of the lowest days in my life, I walked to a hill close to where I lived, slumped down on the sticks and twigs, and began to cry. Staring over the hills, I wept . . . then sobbed, until my hands and face were soaked. The sorrow turned into sighs and groans of anguish that no words could describe. In those several hours, the Holy Spirit was at work, providing a calm and quiet stillness as the Spirit interceded on my behalf. As I walked back to my home, nothing about the trials had changed, but I had changed. I had experienced the intimate ministry of the Holy Spirit. When our prayers and words cease to express the full measure of our pain, the Spirit provides reassurance, consolation, and relief by interceding on our behalf. Romans 8:26–27 promises: In the same way the Spirit also helps our weakness; for we do not know how to pray as we should, but the Spirit Himself intercedes for us with groanings too deep for words; and He who searches the hearts knows what the mind of the Spirit is, because He intercedes for the saints according to the will of God. Yes, I found this great promise to be true, especially in my darkest trials. Have you experienced Christ’s powerful care given through the Holy Spirit in your soul? The Web site of Insight for Living has articles about the Holy Spirit (see “Let’s Get Reacquainted with the Spirit” and “The Spirit Who Is Not a Ghost”). I encourage you to read them and to learn about the powerful, consoling presence of our God. About the author Colleen Swindoll Thompson Colleen Swindoll Thompson holds a bachelor of arts degree in Communication from Trinity International University as well as minors in psychology and education. Colleen serves as the director of Reframing Ministries at Insight for Living Ministries. From the personal challenges of raising a child with disabilities (her son Jonathan), Colleen offers help, hope, and a good dose of humor through speaking, writing, and counseling those affected by disability. Colleen and her husband, Toban, have five children and reside in Frisco, Texas.
  12. https://blogs.ancestry.com/cm/youll-never-believe-which-president-ted-cruz-is-related-to/
  13. Linda Garren

    Bible Verses....

    TODAY'S TURNING POINT with Dr. David Jeremiah / August 4, 2018 The Great Outdoors—Fields Isaac went out to meditate in the field in the evening. Genesis 24:63 Recommended Reading: Genesis 24:62-67 Summer provides a great time to stroll through a field—maybe a park, meadow, or backyard. Beneath you, grass; around you, flowers or crops; above you, blue skies or starry nights. Jesus often preached in the fields of Galilee, and in the fields of Judah, the shepherd boy David composed some of his psalms. Boaz and Ruth met in the fields of Bethlehem. In 1 Corinthians 3:9, Paul compared the Church to “God’s field…God’s building.” Isaac found solitude and serenity in the fields of Genesis 24. His day’s work finished, he went out to think and pray, and to meditate. He was heir of God’s promises, the boy nearly slain on Mount Moriah, the son of a deceased mother and aged father. Isaac found his strength walking in the fields with God. (And at the end of his walk he also found a wife!) This summer, get outdoors. Take time to meditate on Scripture and pray to the Lord. Grab some solitude and serenity. [Isaac] went out to take the advantage of a silent evening and a solitary place for meditation and prayer--those divine exercises by which we converse with God and our own hearts. Matthew Henry
  14. Linda Garren

    Just Interesting Things about This and That

    Okay. Be sure to get your kleenx out. I guarantee the love shown in this video will deeply touch you.
  15. Linda Garren

    Good morning!!

    jb, it is so good for us to hear of your report and to have you back with us, complete with your incredibly creative, imaginative, and fun writing skills. I've just come up to the same level of C/L as you were prior to your DBS. 50/200 every 4 hours. I didn't like the idea of increasing it. It scares me to be on that high of a dose, wondering how long it will last and what will come next. I have to keep reminding myself that we're under God's care and that everything that has been allowed in our lives by Him has a reason and that He loves us as a parent loves their child. He says that He feels along with us when we are scared, sad, happy, hopeless, angry, confused... When we cry, He cries. When we need comfort, He knows just how to give it since he went through those feelings when He was here on Earth, agonizing over what He knew was coming as to His terrible beating, ripping apart His skin, being humiliated, insulted, unloved, and then, finally, crucifixion--an awful way to die. Incredible that He asked God to forgive those who were doing it to Him, saying that they did not know what they were doing (nor to whom). Well, that is the VioLinda blurb for today. I much prefer sharing writings by those who are more gifted as to explaining about these things. It's hard to describe the depth of a relationship with the Lord in mere words. jb, does your house doggie keep you company, and do the horses still look at you through the widow, waiting for their breakfast? We can certainly relate to how uncomfortably hot it has been this year. It's often near 100 degrees F, and if the temp goes down some, we are hit with more humidity, which is worse that high heat. I think it may be from being so close to the Chesapeake Bay and the ocean. Today is an unusually nice one, though--sunny, not quite as hot as it's been, and a little lower humidity. My balcony plants are loving all the rain and sun. Take care, and God bless, jb. VioLinda
  16. Linda Garren

    Just Interesting Things about This and That

    By Christopher Brito CBS News July 23, 2018, 8:57 PM U.K. police credit teen's uplifting notes on bridge for helping "save six lives" Police in the United Kingdom are commending a teenager and her inspiring messages for saving several lives. Paige Hunter, 18, wrote more than 40 heartfelt notes and tied them onto a bridge in Sutherland to help those in despair, Northumbria police said Sunday. According to police, Hunter attached the messages to the railing of Wearmouth Bridge to offer solace to people facing a mental health crisis. One of the messages written by Hunter read: Even though things are difficult, your life matters; you're a shining light in a dark world, so just hold on. Northumbria Police Chief Superintendent Sarah Pitt presented her with an award on behalf of the department to recognize her selfless acts. "We thought it was important to applaud the work Paige has been doing and the help she has given those in Sunderland who are going through a mental health crisis," Pitt said. "Paige has shown an incredible understanding of vulnerable people in need of support, and this is an innovative way to reach out to those in a dark place." "She should be very proud of herself," Pitt added. "It is important that we encourage people to speak out and raise awareness of mental health issues and the impact on peoples' lives." After receiving the award, Hunter said: "I wasn't doing this for an award; it was just something that I wanted to do." "My family are just proud of me and I'm going to put it up on the wall," she said. "I just want to help people and I've been told it's already helped save six lives."
  17. Linda Garren

    Bible Verses....

    TURNING POINT with Dr. David Jeremiah Thursday, July 26 Snap Shot Praying always with all prayer and supplication in the Spirit, being watchful to this end with all perseverance and supplication for all the saints. Ephesians 6:18 We take pictures in our minds and it takes us mere seconds to frame a judgment. Part of this is brain efficiency—our brains need structure and simplicity to function well. If we are not careful we can walk through each day like a sleep walker, never fully present or paying attention to the people and opportunities around us, or worse yet, never seeking God during our day to day life. Recommended Reading: Psalm 36:5-10 When we intentionally slow down and set rhythms in place to connect with God, we begin to sense His Spirit and presence throughout the day. We notice the nudge to call a friend and ask how they are doing. We breathe in the scent of nature and slow our footsteps as we exit work, thanking Him for vibrant color and an evening of rest. We pause before turning on music to talk to God. Instead of relegating God to a specific time each day, intentionally seek to weave your awareness of Him throughout your day. He is present and waiting for you to invite Him into each moment of your unfolding life.
  18. Linda Garren

    Just Interesting Things about This and That

    Click to meet "Moo" the kitten: https://goodmorningkitten.com/kitten/3769/
  19. Linda Garren

    Good morning!!

    ROFL!!!! 😄 You've got the correct pronunciation now, jb!. So the next step is how to spell it. I'm just laughing every time I see it in that sentence above!! I can't help it....!! I couldn't think earlier how it's spelled in a sentence, but I'm pretty sure it is "y'all." But I love the way you've done it. I say go for it and do it your way! Go, jb!!! VioLinda
  20. Linda Garren

    Just Interesting Things about This and That

    I hope you enjoy listening to these soldiers. Be sure to listen to the additional songs after the first one, as well. After reading the news on line the last few days, I find this so refreshing. United in song about God and America, such a positive thing after being so pulled down by the news of what is going on in our country that is sharply and painfully dividing it.
  21. Linda Garren

    Bible Verses....

    Thank you, Dianne. You are just so sweet. I so appreciate you! And I like what you will be praying for me. Thank you. The most important thing to me is to be close to the Lord, and I know that's an important thing in your life, too. You've certainly had your share and more of difficult situations, and I'm so glad you look to Him for strength and comfort.
  22. Linda Garren

    Bible Verses....

    Hi, db. Nice to hear from you. Would love to hear how you are doing. I'm doing just ok. Terrible apathy that can't seem to climb out of. After reading through some of the posts lately, it helps to keep in balance in my mind that the Lord has provided so much to me and has gotten me through some much more difficult things than this. I'm ever so thankful for His blessings, and that there is a reason for this "season" in my life. Will do some emptying of my in-box right now.
  23. Linda Garren

    Bible Verses....

    The Day I Fervently Asked Jesus To Come Back How a friend's tragic death gave me a new perspective on hope. Caleb Kaltenbach /June 21, 2018 Image: Jake Blucker / Unsplash When I was young and single, I moved to Southern California to work at a church. I didn’t know many people in the area, but eventually I became friends with a couple of guys from the church, and the three of us rented a house together. Having a bachelor pad was fun—late nights, tons of jokes, and inappropriate pranks galore. After a couple of years, one of my roommates got married and moved about 15 minutes away from our bachelor pad. I wasn’t surprised—he was the opposite of me in almost every way you could think: tall, good looking, lots of hair, in shape, tan, and he even worked for the Drug Enforcement Administration as an agent. Once he got married, eventually the other roommate and I went our separate ways. About a year later, one evening near the end of October, I got one of those late-night phone calls that no one wants to receive. My roommate who had gotten married had been killed in a motorcycle accident. He had been riding his motorcycle down a residential street that evening when another driver made an illegal U-turn. My roommate’s motorcycle T-boned the car, throwing him from his bike and hurling him into eternity. It was horrific. I arrived at the accident scene about 30 minutes after the call. Much of the site had been cleaned up already, but my friend’s bike was still in the middle of the street. It was absolutely destroyed. Friends who had gotten the same call started arriving. After a while, many of us went down the street to his house. His young widow was at home, understandably crying her eyes out. The setting of the house gave the false impression that he’d be right back. His drink was still on the counter, clothes were laid on the bed for tomorrow, the TV was on, and his book was in his chair. I half expected him to walk in the door, but I knew that wasn’t going to happen. I sat in his house with 15 other people for about three hours. No one really said anything. There were lots of hugs and sobbing, but no conversations. Every person in that room was a follower of Jesus, so we prayed. We weren’t even sure what to pray, but we prayed. A couple of weeks later, we had the memorial service and graveside observance. I still remember the graveside as if it were yesterday. I’ve attended many gravesides, but I’ve never seen as many people stay for the entire covering of the casket as did for my roommate’s. It was as if none of us wanted to leave, because if we left, we were submitting to the reality that he was gone from the earth. Imagining the Last Day Before I left the graveside, my eyes looked beyond the freeways of Hollywood and fixated on the hills behind Burbank. Clouds began forming behind the hills and started moving almost on top of them. I don’t know how clearly you can picture it, but it was a dramatic scene that touched my already emotional heart. I fervently asked Jesus to come back. But I knew there was a good chance that my timing wasn’t his. I did, however, gain a perspective of hope that day. As I gazed at the hills, I was reminded that the power of God will be seen in supreme majesty when Jesus returns to bring justice, order, and redemption to this world. Closing my eyes, I remembered Paul’s description of Jesus’ return: The trumpet will sound, the dead will be raised imperishable, and we will be changed. For the perishable must clothe itself with the imperishable, and the mortal with immortality. When the perishable has been clothed with the imperishable, and the mortal with immortality, then the saying that is written will come true: “Death has been swallowed up in victory.” (1 Cor. 15:52–54) Imagining what it would be like on the last day when my roommate would be brought into his new God-given body provided hope. I still have that hope because I believe my God is powerful enough to bring Jesus back from the dead and will do the same for those who follow him. As much as I loathe death, I know that it won’t have the last laugh. God’s greatness deserves our trust and willingness to align our lives with his power. The hope he gives extends beyond the circumstances of society and the inconsistency of our lives. Only he has the power to give us such hope. The Bible gives us a powerful promise that one day a greater tomorrow will arrive and we will all live in it. The power of God points us to a hope that is found in what he will do in the greatest tomorrow we can imagine! So whatever tomorrow delivers, whether it’s good news or tragedy, we will make it through because God holds tomorrow and will walk with us into tomorrow. He created and prepared tomorrow. So often, though, it’s a challenge to believe this. We struggle to remain truly convinced that God is all powerful, has a plan for redemption, and is guiding us into a better tomorrow. When horrible things happen in our world, we’re far from certain that God can work them out for the good. Sometimes I have to stop and ask myself: If I believe God is sovereign and owns tomorrow, why doesn’t my life always reflect it? To be sure, I understand that there are some who have clinical depression and other diagnosed disorders. But overall I believe that my worry can be a barometer of my faith and trust in God. I always wonder how my life would be different if I truly lived as if God already has my path planned. I’m sure there’s a good chance you’ve wondered the same thing about yourself. In those moments when worry starts to rise and faith starts to fall, I must remind myself to go back and read about the power of God. Whether those are verses that describe God or stories in the Bible that build my trust in his power despite overwhelming odds, I’m comforted when I get done reading about his faithfulness. Along with reading about God’s power, I have to be consistent in my daily prayer time. If I’m not spending time talking with God and listening for him, how in the world will I trust him? Similarly, I set aside some time to think about and remember all the times in the past when God has been faithful to me. He’s seen me through some pretty dark hours. When I can decrease the worry and increase my faith, it allows me to remember that God is in control and already has a plan for tomorrow. But the problem with worry is that it doesn’t only decrease my faith; it compromises the influence I can have in the lives of others. Having high faith and low worry takes my eyes off myself so I can do what God wants me to do: graciously offer hope to people today. The Depth of Hope With a God who has our back, we’ve got little to worry about. Paul assured us of the uselessness of worry when he wrote Philippians 4:6–7: “Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.” God has tomorrow under control because he’s the wisest and most capable being in existence. He is fully loving, gracious, and merciful, and he is personally involved in the lives of his followers. His unequaled power has important ramifications not only for our lives but also for our interactions with society. We can boldly and graciously offer hope to people today because God has created and prepared tomorrow, and he will walk with us into it. Since God is supreme and has all power, we should refuse to grant fear the luxury of controlling our next steps. We desperately need hope. When we talk about the word hope, we usually equate it to wishful thinking. We’ll say things such as, “We hope they accept our bid on the house we want” or “I hope I get the job I interviewed for.” In our culture, hope has become synonymous with wishing or aspiring. But that wasn't always the case. The word hope has more depth in the Bible. The authors of the Bible understood the word hope to be the expectancy of a promised outcome or the waiting period before a promise was carried out. Writers such as Paul also believed that hope originated from God and was assured by his supremacy and the strength of his integrity. That’s why Paul said in Romans 5:5 that hope doesn’t shame us. The hope that society longs for is found in God, who walks with us in life. The hope he offers will counter our fear and worry about the future. Our expectant hope is that God has the path laid out before us, will journey with us, and already knows what tomorrow holds. Many people today are mired in worry and struggling to find sources of hope. We see disturbing trends in society that look irreversible, and we feel powerless to recover the values we’ve lost. But even here we can have hope, not because a future elected official or a boycott or a social crusade might reverse the situation, but because God is working out what is best in his time. He has promised the restoration of all things according to what is right, and he will do it. With boldness and grace as our allies, let’s confidently point people in the direction of what hope has to offer: God himself. He himself is the focal point that we look to when we’re fatigued, upset, saddened, or troubled about the coming days. Hope reminds us that our best days are ahead, not behind us. Surrender tomorrow to God—he’s already been there. Caleb Kaltenbach is a pastor in California and author of Messy Grace: How a Pastor with Gay Parents Learned to Love Others Without Sacrificing Conviction (WaterBrook). This article is adapted from his latest book, God of Tomorrow: How to Overcome the Fears of Today and Renew Your Hope for the Future
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