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stump

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Everything posted by stump

  1. stump

    Mired in Muck

    Who said anything about censoring? Besides, part of being an adult is understanding that some topics are better discussed elsewhere. Like in a thread dedicated to the politics of PD (which is easily ingnored by those only wanting to help someone with a PD issue). Or on a different forum dedicated to discussing health care related political topics. FWIW, I'd have responded similarly if PatriotM had posted something similarly political, even though I generally agree with him on politics. Anyway, let's get back to papa57, and helping him with his current struggles.
  2. stump

    Mired in Muck

    🙄 Can we keep partisan politics out of this place?? Anyone thinking what happens in D.C. in a few weeks, or in 2020, or any other time, has more than a tertiary effect on their lives needs to reexamine their perspective. I've thrived under D and R administrations, and I've had hard times under D and R administrations. My happiness and prosperity is not dependant on the political climate.
  3. stump

    Mired in Muck

    If you have an unsupportive community, and a small one at that, maybe you should consider moving to a more populated and/or supportive area. I know moving is expensive, stressful and disruptive but unless you have something else keeping you in your current home it might be worth thinking about. Otherwise, not much wisdom I can offer. I'm not at that stage of life yet.
  4. stump

    Sports and Dopamine

    Adjusting by an hour isn't a big deal. Let your body tell you what to do, rather than some arbitrary schedule.
  5. So you never drift a little over the speed limit, or fail to notice a burned out tail/head light? I got pulled over twice in 10 minutes for a burned out headlight (second cop had a good sense of humor when he found out). The light was working when I left the house, but burned out on the way home. Guess you always keep a spare bulb in the car?
  6. stump

    Welcome to the club

    Kind of depends on what I need to do those days. So far that hasn't been a work day, thankfully. If I'm with family and friends that know about the diagnosis I just don't worry about it and let my tremors do their thing. If it were to happen on a work day I'd go home/call in sick if could. In 3 years I've only had maybe 3-5 days like that. And usually it's not the whole day, but one dose that really is bad, and the next one at least kinda works. The last time was not long before I had my meds increased. Having a couple days like that is probably an indication that meds are needing some adjustments.
  7. stump

    Welcome to the club

    Yes, that really is how it works. Eventually you'll have a day where you take your meds exactly on time, with proper separation from food, and everything. And they won't work. You'll have the tremors, stiffness, etc anyway. Those days are special. Wish it wasn't that way, but it is.
  8. So, one of my bucket list items is catching and landing a 100+lbs halibut from my kayak. Last several years I've been frustrated by such things as new babies and grad school keeping me from having the time during Washington State's absurdly short halibut season to get out and fish for them. We typically get around 3-4 days a year to chase halibut. I was all set to head out to Neah Bay right up until yesterday when the forecast (which hasn't changed since then) was calling for 5-8ft surf and 7-8ft swells. Being in a kayak, for where I intended to fish, it's a beach launch through the surf zone to get out to the fishing grounds. Even if I was willing to brave 7-8ft swells (and that's beyond my comfort zone) that surf height would almost guarantee I'd get flipped on the way back in. I've never gotten hurt doing that (yet at least), but I have broken equipment. So that's a no-go. Grrr. Just have to hope those conditions keep enough power boats in port to leave enough catch quota remaining for them open it up again next week. Meantime, since I can't go to the coast I'm going to go to my church's annual men's retreat. It will be a great chance to spend quality time with my best friend and many other good men from the church. Bonus that it's on the south end of Whidbey Island, and there's a couple bays just 15 minutes from the retreat location that are supposed to be good for halibut fishing. So, I'm bringing the kayak and fishing gear, and early in the morning on Saturday (halibut is open Thursday and Saturday this week) I'll head out there for a couple/three hours and see if I can luck into one. If not I may try again Saturday evening if time permits. I'll also try fishing for ling cod on Friday after work on my way to the retreat, and possibly on Sunday after the retreat wraps up. Might as well have a go. Never know if I'll get to fish halibut next week until Tuesday or Wednesday anyway. Other trips planned for the summer include a bunch of crabbing from the kayaks with my family, and once the salmon are in I'll try to get out a few times a week before or after work for a couple hours each time. Plus there's the Oregon Rockfish Classic (kayak fishing tournament) I've gone to the last several years that will be July 15 this year. Later in the summer I'll head up to scout a new area for deer hunting, and since there's a decent chance for a bear I'll bring my rifle and bear tag along. That spot will involve 14 miles of paddling my kayak plus a 1.5 mile portage in the middle of the paddle, and a 3 mile hike with 4000ft of elevation gain (each way). Hopefully I'll get to take each of the 2 older kids camping and trout fishing at some point this summer too. Then there is deer hunting in mid-October, and elk hunting in early November. I'll try to update this thread throughout the summer with pictures and stories. Hope I can be of some inspiration to other PWP's out there, and if not, I hope you all at least enjoy the reports.
  9. stump

    Summer adventure season starting

    Got home Monday night. Need to find a good photo hosting site and upload some good pics to share here.
  10. A major difficulty you'll have is just a simple matter of math. PD is relatively uncommon overall (lifetime risk is under 2%), and young onset is only 5-10% of PD on top of that. So even in a highly populated area there will only be so many YOPD folks. Of those only some will be interested/able to attend sessions. Even those who do attend will usually only continue as long as they perceive benefit, which usually is a matter of months, not decades. Best of luck in getting a group going. I hope you can make it work and last.
  11. stump

    Summer adventure season starting

    Wrapped up my visit to Assam. Heading to Delhi. Tomorrow I'll be visiting the Taj Mahal. I'll try to post pictures but internet is expensive and unreliable so it may be a couple days (once I'm in the Netherlands).
  12. stump

    Summer adventure season starting

    About like it was for heat in Hawaii last month. Only seen one wrecked car so far. Which is amazing that it's just the one.
  13. stump

    Summer adventure season starting

    Been in Pune, India a few days now. Driving (well, being driven) is quite the experience. On the drive from Mumbai to Pune I saw monkeys along the road, same as you might see rabbits or raccoons in America. And here I thought our highways could be crazy. The roads here are next level insane. What shocks me is few cars have significant body damage. I'm not kidding or exaggerating when I say that driving rules are at best a vague suggestion. It's nothing to have 5 vehicles (not counting motorcycles) abreast on a 3 lane road. And a couple motorcycles too. Lane markings, our norms for yielding, lights, etc are routinely ignored. Yet, somehow it all works. Food is excellent so far. People are very friendly, at least in the professional environment. Got to see the final day of the Ganesha festival which was a treat. Thursday I will be in Bangalore for the day. Then Friday night/Saturday morning I fly out to Assam to tour tea estates. Monday I fly to New Delhi and Tuesday will visit the Taj Mahal. Then Wednesday fly to Amsterdam.
  14. stump

    Summer adventure season starting

    After 11 days in India I'll head to the Netherlands and between work and play will be there for another 6 days.
  15. stump

    Summer adventure season starting

    Leaving for India in the morning!
  16. stump

    Working with Parkinson's?

    PD is usually pretty slow to develop. I'd say you should keep working just as you have been as long as you can or until you would have retired anyway. Most likely you'll be fine to keep working until 65 if not older.
  17. stump

    Lymes Disease Mimics PD Symptoms

    Lyme is devilishly hard to accurately diagnose. I think there's only one or two labs with a reputation of getting it right. If you can get that test done it might give you peace of mind. That said, not everyone responds well to any given PD medication. Being on my phone I can't see if your signature block lists meds, but if you can post what meds you have tried, including dose and frequency that might help. Including non-PD meds helps too.
  18. stump

    Anniversary

    Remember that PD is supposed to be diagnosed based on bradykinesia plus one or more of resting tremors, rigidity, and postural instability. If he's seeing bradykinesia plus rigidity in your leg (and/or other extremities), even though you are walking seemingly correctly that would be enough. What is APS?
  19. stump

    Early DBS Study

    ShopGuy - there's also the consideration of advancing technology in DBS. My last appointment my MDS said that even if I were getting close to her recommending DBS she would want me to wait as she saw a LOT of advances coming in the next few years. While some of that is in the controller, which can be replaced with the battery after several years, some is also going to be in the electrodes themselves. Hard to get an upgrade there. Basically her advice was that unless it was now or never to wait.
  20. stump

    Early DBS Study

    Cool info! Though I'm still not sure I'd be up for participating in that study (almost at 3 years diagnosed so I'd qualify in that regard). I'd not be able to conceal PD from my employer anymore if I do, plus I'm not sure I'd want to be subject to those risks yet. Though, if I was able to go med free it would be nice to not worry about timing of protein consumption...
  21. stump

    Who's on your healthcare team?

    Not really. More my choice, combines with knowing there's not really any great data on any particular diet or exercise being better for PD, so I just follow general health guidelines. By the time I'm mid-50's to early 60's I'll need to get hooked up with a cardiologist. Both grandfathers died of heart attacks in the morning doing yard work/gardening (one at 69 one at 74), one grandmother had a massive stroke at 70 followed by a heart attack (she somehow lived to 80). Plus my dad and one of his sisters had to get multiple stents at 69-70. My dad's other sister had a major stroke in her 40's, though that was due to a blood clot that formed after a serious accident.
  22. stump

    Who's on your healthcare team?

    My MDS wants me to come in 3x per year. Between the drive and the cost (deductible on my insurance) I'm not going more than twice a year, unless something comes up that compels an extra visit. Other than that, to SDC's question, I have a family doc that I rarely see for myself (kids go in each year though). Chiropractor that's unfortunately just as far away as my MDS, so I can't get in nearly as often as I otherwise would (did go just a couple days ago as I'd apparently sprained my neck playing golf for the first time in almost a decade). I don't have a PT, or a nutritionist. There is a neuropsychiatrist that is part of my MDS's group, but thus far I've seen him once, and that was just for a baseline evaluation. Similar to the PT, ST and OT groups. I'll only see those folks for an acute need if one comes up, or perhaps every 5 years to document progression.
  23. stump

    Summer adventure season starting

    Another hurricane heading our way. Lane is currently a category 4. Luckily I should be able to get home before it hits. Assuming nothing causes major problems with the flights. Though I'll get to come home to seriously smokey conditions due to the western wildfires.
  24. stump

    Struggling with family relationships

    While Patriot is correct that might not be the most useful way of stating that. Consider switching to Rytary if you either have insurance coverage for it or meet the income guideline to get it free from Impax (300% of federal poverty level for your family size). I found my day time sleepiness was significantly reduced when I made the switch.
  25. stump

    Summer adventure season starting

    No fish today. Got massive take down on my rod, but it was probably a giant trevally. Took the bait hard, but by the time I got the rod out of the holder it probably ran into a rock or coral hole and that cut the line. Surf launch was the hardest I've ever done. Took several tries and many soakings to get through the surf zone. Once past the breakers though it was fine. Almost kept the kayak right side up on the landing until the extra wave broke with me a little sideways. Will post a picture in a bit.
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