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Peace last won the day on February 24

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  1. Thanks for the explanation Kevin. A few months ago I was scheduled for a colonoscopy and became very concerned about the anesthesia but my PD doctor said it wouldn't be a problem and my family doctor said any change in symptoms would be temporary. I was still concerned enough (I really had myself worked up) that my family doctor let me do one of those in home sample kit deals instead. I guess what fueled my worry was two surgery two years in a row then the third year getting diagnosed with PD.
  2. HI Tom. I always feel, no matter what I do, that its not enough. If I walk I wonder if it was fast enough. If I do other exercise I wonder if I did it long enough. And if I miss a day completely then I feel bad. My MD doctor told me when I was diagnosed that he wanted me to do something everyday strenuous enough to make me sweat but to accomplish this I need to time it when my meds are at their optimum or else I can't move fast enough due to feeling unsteady and I have one leg that gets wonky and won't mind. I was thrilled that my Fitbit registered hoeing the garden as exercise and noted a decent increase in my heart rate. Getting true aerobic movement can be difficult so the days I hoe I am going to count as my exercise and I think that will be adequate. I just think its important to keep moving! Some days will be more then others but never feel that what you do or time contraints make it inadequate. It's ALL good. Keeps the muscles looser and any increase in heart rate gets more blood to the brain. Trust the doctors that they will get the right diagnoses. Alot of people say they feel worse after exercise but hoping the long term effects are worth it but you will know if you're doing too much. LISTEN to your body. There's good exercise induced discomfort and not so good. Take care.
  3. Mihai-I have read "The Brains Way of Healing". I've gone back and read the chapter you are talking about whenever I need a reminder that there are things I can do to combat the effects of PD. His other book "The Brain that changes itself" is also a good read. How is everyone doing? Staying busy? I live near a river that got completely out of its banks due to all of the rain. Major flooding. I finally got my garden planted but not sure how well the seeds will do as the dirt is full of clods. My husband constructed a fence around it to keep out the goat who has full run of the place but I don't think its enough to keep out night time visitors such as opposum and raccoons. We may have to put up some lattice across the bottom half. I ordered and received two Olive Egger chicks and two Welsummer chicks from our local ag center. I'm excited to see the eggs they will lay. The Olive eggers lay green eggs and the Welsummers will lay very dark brown eggs that are called chocolate eggs. Should make the egg carton look interesting. Now I'll have blue, green, 3 colors of brown, cream and white eggs. My brother gave me a funny face when I told him but they are all the same inside! I have a sister that won't eat any eggs that aren't white and come from a store. Silly woman. I like giving them to coworkers and friends. Take care my friends and keep keeping on.
  4. Peace


    It's always interesting how PD affects us all differently. I get the toe curling when I walk but not when bicycling. I hope you're able to get back on your bike soon.
  5. Peace


    That can actually be the most beneficial way. Research shows that if you ride on a tandem with someone who is a stronger pedaler, and makes you work a little harder than you would on your own, the benefits were increased. Have the other person pedal at a rate just above your comfort zone.
  6. Peace


    Thanks everyone for the feedback. Taking extra levadopa is an excellent idea. I'm going to try that.
  7. I'm so sorry for your loss Troy. Thank you for sharing your story.
  8. Peace


    Do any of you ride a bicycle for exercise? I've seen articles written on biking for PD and like most of you, I've seen the video of the gentleman with PD ride a bike and his movement issues disappear while riding. I've also seen all of the Davis Phinney bicyclers. Not once have I heard of anyone having negative symptoms due to riding a bike so I'm just curious if anyone has had my experience. Right after I get off of a bicycle I can't walk. Well, I can, but only with extreme concentration and very slow. My legs just do not want to follow my brain's command to walk. It's not what I thought "freezing" would be like but maybe that's what it is. It doesn't happen when I use a stationary bike. It's equally fascinating and irritating. Anyone have this happen? Does anyone know or would like to venture an explanation as to a cause? I'd love an explanation about the neurological components involved in producing this reaction to bike riding. Maybe it has something to do with simultaneously balancing and pedaling since it doesn't happen on a stationary bike. Thanks for any thoughts on this and share any odd things that happen to you that you've never heard mentioned before.
  9. Sending hugs your way jb. Take care and I pray all will be well with you soon.
  10. I'll be praying for you Linda.
  11. Good Morning! Omaha Tom, do you still have wind? Because now I have it so it must be coming from you! Thanks for your post. You are so right about animals. They get us up and moving which is a really good thing. I'm definitely leaning towards getting another horse. I think the activity of taking care of one would be good for me and I'm also thinking riding may help with some issues I'm developing with balance. Plus, in 5 or 10 years I don't want to have that as one of my "should have dones" when I think back. Besides, they just smell good. It's like aroma therapy to me. Have a blessed day everyone. Keep flipping those tires LAD!
  12. Hello Friends! I've been trying to thaw out. We recently had enough rain and above freezing temperatures to get rid of the ice. It's nice to be able to do chores without the fear of falling on my rump. My husband put yaktracks on my boots which helped a lot. Does any one know how frustrating it is to need an extension cord that can be seen perfectly under 3" of ice but can't get to it? Very frustrating to say the least. It was connected to the deicer for the chicken water but I wanted to also plug the heat lamp in but darned if I could get it out from under the ice. Oh well, I just confiscated the one my husband uses to plug in his truck. Needless to say, when he got home he got mine out from under the ice! LOL I thought maybe I was done having horses but I'm getting horse fever. I still haven't decided but I sure like looking at the ones for sale and dreaming. You know, dreaming of riding off into the sunset on my trusty steed, not the dream (reality) of catching then convincing them to actually leave the barn without having to negotiate with a 1000# animal. I liked reading all the posts and seeing what everyone has been doing. Dianne, I got an extra copy of My Degeneration to pass on to others to give them an understanding of Parkinson's. And TexasTom, I've never been one for jogging but after watching your video on slow jogging I gave it a try and I can do that! I see we have a Tom in Omaha also. Omaha Tom and jb, I'm fighting the nasty weather also. It's raining today but will be back down to only 9 degrees tomorrow night with more snow in the forecast. Take care everyone and keep the apathy and depression at bay.
  13. LAD Here's some additional thoughts for you. My concern is meeting people for the first time and being afraid they will discount me and not care to get to know me when they realize I have issues. If you didn't know the person before they had PD, take the time to really see the person, not just the visible symptoms of their disease. Know that the person loves, dreams and laughs just like everyone else. Who knows, we may have the same sense of humor or maybe the same interests as you. One of us could be your next best friend but unless you take the time to talk to us you may never know it!
  14. jb: I'm getting by pretty easy this year. My family has decided to do the soup thing instead of the traditional holiday meal. My soup will be a spicy cheesy chicken soup that you eat with tortilla chips. I did find red and green holiday tortilla chips at the store today and thought "that's perfect" so I bought them. After a snowy November, December has been really mild. This is fine with me though a light snow on Christmas day is always a treat. The thread has been quiet lately. I hope you're all doing well and just busy with the normal seasonal activities. Don't push yourselves to hard. Please take a break when needed so that life's priorities (taking care of yourself, family, friends) will rise to the top and all of those unimportant things that want to worry us will sink down below the radar. Either PD or the medication (c/l) is causing my facial muscles to want to tense up---like gritting my teeth. I have been asked "why are you grimacing" a few times lately and I hate it because I'm concerned I'm taking on a "don't approach me" look and that's not the message I want to send out. If anyone needs a recommendation for a good book let me suggest Dancing with Elephants by Jarem Sawatsky. Mr Sawatsky has Huntington's Disease which he describes as a combination of Parkinson's, Alzheimer's and Schizophrenia. His story on how he is coping with his disease is inspirational. Have a Blessed and Merry Christmas everyone. May the New Year bring to us all that Dianne mentioned. For truly that would be enough. Marcia-I hope Santa brings you a new computer because we need you on here with us.
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