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About shirleyengebretsen

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  1. shirleyengebretsen

    Voice weakness

    My I learned a lot reading your responses. So interesting. I have had DBS for 3 years. I was having trouble walking before , only a slight limp afterwards. I am having trouble pronouncing words as the muscles on my lips and my tongue feels stiff. Neurologist says it the DBS. i am getting a softer voice but believe that is the disease not the DBS
  2. shirleyengebretsen


    I was told that it lasts about ten years. I received mine 3 years ago and it has helped tremendously.
  3. shirleyengebretsen

    Removlel of thread

    I agree whole heartedly. Where is our freedom of speech?
  4. shirleyengebretsen

    Treating Dystonia

    I have not experienced this, but i know there are other medications to be tried if that one does not work for you. Some people find the Neuro patch helpful Shirley
  5. shirleyengebretsen

    Still In Limbo....No Dx

    Serenity now, I would find a neurologist that specializes in Movement disorders or PD. There are medications that have seem to slow the progression of the disease doe some patients, if caught early enough. It is certainly worth the effort. Shirley
  6. shirleyengebretsen


    I think you are correct. Your internet connection may be the issue.
  7. shirleyengebretsen

    Losing my Voice

    I learned at a seminar in Redding that there is a way to protect our voice. Dr. Shelly Von Berg a speech therapist and professor at Chico State University and on the Board of the Parkinsons Voice Project was the speaker. In summary, our vocal chords are muscles and need daily exercise to remain healthy especially forvPersons with Parkinsons. She specializes in Parkinsons disease. She has been my therapist for a year now. I can tell you, this is saving my voice. The sooner you start the Loud crowd or Parkinson's voice project, the better. You may not gain back what you have already lost,but you can keep from loosing more. The training book is free from the Parkinsons voice project. It is extremely helpful to have a speech therapist trained in Parkinson's. It makes a huge difference.
  8. shirleyengebretsen

    A thread for anyone interested in topics of Christian faith--all invited.

    I am thankful for our shepherd who will never forsake us, today I experienced a little rougher road, so I opened His book to Psalm 150 and meditated on the reasons to praise Gof. It was nit long till my heart was lifted. Shirley
  9. shirleyengebretsen

    Single with PD

    Lonnie, I enjoyed your comments on interdependence.
  10. shirleyengebretsen

    Essential tremor and DBS

    I had DBS surgery a year ago. I had it done in a MRI machine, because I could be unconscious during the surgery. That meant surgery not 2 parts. First in insertion of the tubs in the brain j. Then a return in a month to have the battery installed. I was out of the hospital the next day in both surgeries.
  11. shirleyengebretsen

    I need to manage memory problems

    I over dosed on C/L once and had to go to the hospital.. They gave me several shots of Benadryl and told me if that ever happens again to take a couple of those pills. Thankfully it has not happened again. I use a phone alarm system to remind me to take my meds.
  12. shirleyengebretsen

    Considering Rytary

    I have been on Rytary since last fall. I take it three times throughout the day. It lasts 4 hours but begins to wear off the 3rd hour. I am on the 95 blue and white pill. I found Rytary very helpful. I am not as tired as I was on the 25/100 IR. However, recently I have been experiencing higher levels of anxiety when I am about an hour away from the next dose. I take a half a 25/100 pill to boost my system until the fourth hour and that is helping stop the anxiety. I have two concerns with Rytary. The first is the cost. I could not get our local pharmacies to accept the free dosage. My cost through express scripts is $112 every 90 days. That is not bad, but combined with my other medications it is becoming more difficult to keep up. The second concern is my anxiety levels have greatly increased. I read one of the possible side affects of Rytary is anxiety. But I also know PD causes anxiety as well. I am thinking of going back to the 25/100. By-the-way I also have DBS and wear the Neuro patch. Any one have suggestion?
  13. shirleyengebretsen

    Rock Steady Boxing = ZERO Progression

    Thank you for posting this.
  14. shirleyengebretsen

    Non motor manifestations

    I had noticed a drastic change in my ability to smell things and when I did smell something it was not accurate. This happened about ten years before diagnosis. I went through some tests to fine=d out if I had a sinus infection and they could never find out what the problem was. So my first symptom was loss of smell. Recently, I am experiencing trouble eating without coughing. I often swallow in a way that causes a series of coughing episodes. I have learned this summer at a seminar on Parkinson's disease, that it is because the muscles in the back of the trought are stiffening. They told us to use straws to help the swallowing process and to avoid ltilting you head back whenn you drink, like you do when you drink out of a water bottle.
  15. shirleyengebretsen

    Single with PD

    There is an American book I would like to recommend to you Natasha. It is written by a psychologist and is tittle, "Never Go Back." It teaches principles of decision making that can help protect against repeated mistakes. It does not make decisions for you. It only gives things to look for when someone is claiming they have changed, be it a spouse, a boss or a friend. You might enjoy the read. Shirley