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matt40413

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  1. matt40413

    Dystonia and Parkinson's?

    I noticed it seems when dystonia is a presenting symptoms (especially in YOPD) it's foot related I believe.
  2. matt40413

    Rest twitch on occasion?

    Is this considered a resting tremor? or no since it requires flexing a finger? (So a postural in that case, despite my "hand" being at rest)
  3. matt40413

    Dystonia and Parkinson's?

    Did u have dystonia before taking medication? It seems like it's mainly a treatment based symptom from what I gather.
  4. matt40413

    Dystonia and Parkinson's?

    So im a bit confused about Dystonia. My thumb does this thing where it gets "tensed" up for a split second and gets pulled inward-ish. But only lasts a second. It feels like a muscle spasm almost but lasts for like a half second. I've been diagnosed with ET and have no other PD symptoms of any kind (for the past 6-7 years at least now nothing has changed). I've always had muscle spasms though, so I wonder if thats maybe related. ANYWAYS, from researching Dystonia the general "vibe" I got from researching it was that Dystonia as a symptom of PD is actually quite rare.....and it's usually caused from the side effect of medication. And when it DOES happen (Especially in early onset PD) it's usually foot dystonia. From such quotes like this "It is very uncommon in untreated patients and is more frequently seen as a complication of its treatment" Sidenote: Is it true that PD only affects one side of the body at a time? IE: Would PD basically progress on one side heavily (IE: First Fingers--->Hands--->Arm-->Legs-->etc) until it goes to the other sides, or would it be more likely to be like (Fingers On left--->Fingers on Right-->Left Leg affected---->Right Leg affected-->Etc..). Cause if so this "thing" i've been getting on my hand the past 2 days has been on my "less" apparent tremor side (My left thumb has ET way more) Thanks
  5. matt40413

    Does this look like a PD Tremor?

    Ah, see besides this "tremor/twitch" I have no other symptoms at least that the Neuro could tell (I don't feel anything else either). I do have muscle spasms on and off all over my body but i've had that since I was a teenager (I have a feeling maybe BFS) What exactly is it about the way you walk that makes them think it's PD?
  6. matt40413

    Does this look like a PD Tremor?

    My handwriting has always been super bad (since like.......forever). Everything i've seen recommends that mine is actually a postural tremor since when my hands are completely at rest i'll only get a twitch or two on occasion. it requires me bending my fingers to incite the tremor. Also were you diagnosed with actual PD or just parkinsonianism? (there is a difference apparently im told?)
  7. matt40413

    Does this look like a PD Tremor?

    Do you have PD diagnosis out of curiosity? For me it doesn't make any sense for this to be considered a rest tremor because when my hand is completely at rest the tremor won't happen. It only happens when bending a finger/thumb. I posted in ask the doctor and Dr. Okun says it's not classical for PD but didn't go In to detail.
  8. matt40413

    Does this look like a PD Tremor?

    Thanks, yeah it's basically been this way for 8+ years. Both hands have it, left worse than right (Which is weird cause my right hand is dominant). I've heard ET was "bilateral" but I dunno if that means both sides have to be exactly the same. I have no other symptoms (Smell is good, arm swing fine, no slowness of movement (my neuro in fact said "I move too well for a PD patient"). I just get concerned because at rest occasionally my thumb/finger will feel tense and it'll do a single twitch (Which it's done that off and on for a while). It still never get full on tremors though. I guess a PD patient would typically start with a rest tremor developing into an action/postural tremor as opposed to the opposite I suppose? I'd also assume i'd get other symptoms if it's been 8+ years. I know YOPD is slower progressing.....but 8-10 years and nothing really new? (outside a little bit of a slight shake when holding heavy things but even thats been for a good while and not very severe).
  9. matt40413

    Does this look like a PD Tremor?

    Just out of curiosity what makes it NOT look like a PD tremor (not arguing just curious)
  10. matt40413

    Does this look like a PD Tremor?

    it's been this way for 7-8 years. Hasn't changed a whole lot. I have the "slightly" shaky hands when holding something (like a coffee cup) but no other symptoms really (at least PD wise). Is this considered a rest tremor since my hand is at "rest" but it requires bending a finger/thumb to cause it? I guess that would make it postural right?
  11. matt40413

    Does this look like a PD Tremor?

    Sample of the tremor I feel. I was diagnosed with ET...but occasionally i'll get a single "twitch" at rest (like the video but much more minor). Otherwise it's been this way for 8 years or so now. Would this be considered a postural tremor or? it's obviously pretty quick and not super rhythmic, then again I don't know if PD tremors or slower or what... Thanks!
  12. matt40413

    Rest twitch on occasion?

    Hi, I was diagnosed with ET about 7 years ago (actually more like 8-9 years now since i've had symptoms). My typical symptom is a tremor in my fingers when bending them in a certain position (it will start to tremor if I try to bend my thumb inward for instance). It's on both hands (always has been) but my left is worse than my right. I was diagnosed with a general tremor 8 years ago (with not much info) but saw another neuro a year and a half ago (and most recently a month ago) she concluded it looks like ET and again said I "move too quickly and normally for it to be parkinsons". Im 32 years old so PD would obviously be rare. I have no slowness of movement or any other PD symptoms to note (or family history) however one symptom bother me sometimes. Occasionally my thumb will feel "tight" like it's a tight rubberband internally, and occasionally it'll do a single twitch (or two) when at rest. This doesn't happen all the time, and 99.9% of the time when my hands are at rest they don't move at all (although my hand can be at rest but holding my thumb inward will cause a tremor.....but since im putting tension on it I wouldn't think that's a rest tremor). It's been this way for 8 years and hasn't really progressed if at all (although flexing a muscle or holding something heavy will make my hands shake slightly). Is the "sudden twitch" i get (1 or 2 twitches) on my thumb any concern for PD? I remember occasionally getting them even 7-8 years ago. It just feels like that muscle is "tight". Considering I haven't had any progression as far as Bradykineisa/Rigidity (Neuro said I was very flexible and all other tests were fine). Arm swing is fine,etc... im guessing that would go against PD? Surely over 8-9 years something would've progressed by now to........Something/anything else? I know PD progresses slower in YOPD....but that slow? I've also heard of PD patients progressing from a Rest to also developing an Action/Postural tremor but never from Action/Postural to developing a Rest Tremor afterwards (Unless im mistaken although im sure it happens). Here is a video btw of my tremor (it's slightly worse since i've been anxious here lately anyways, it doesn't show the rest twitch but imagine a single twitch of my thumb with a really low amplitude, it's very very slight when it happens....and very rare). Other fingers do it to, but since they can't move as far as the thumb it's less noticeable (also not as bad on my right hand either, but it's always been on my right hand). It def. gets worse with anxiety or if im tired/etc.. Im not sure if the "speed" of the tremor is any indication of PD vs ET. Im assuming since this requires "tension" to make it happen it's not a resting tremor right? I almost wonder if this is some spasm problem, because sometimes I can feel muscles up in my arm almost spasm at rest too (I've always had muscle spasms since I was a teen anyways all over my body) and since I do computer work for my job this maybe causes this rest twitch. Might explain the "tight" feeling in my thumb. Thanks! (Also I understand a DAT scan will rule this out but right now do not have the funds for it, just curious on your opinion )
  13. matt40413

    Twitching vs Tremor?

    I didn't think so. Im not even sure the "ET" diagnosed tremors I have would really even be considered tremors. The twitches I was experiencing here the past week has subsided a lot (my index finger is no longer twitching or feeling stiff while typing). So I guess I had a bout of carpal tunnel or something. I've been sick anyways this past week so maybe the stress/feeling bad just made my twitches worse. Stress/feeling unwell seems to just make me spasm in general. Which i've heard happens in BFS. Regardless I think your correct that I should contact my neuro. Thing is I basically have zero PD symptoms besides the "tremor" which isn't at rest. I think just the rest twitches (which were like a single pulse or two) I had this past week had me concerned. Thanks!
  14. matt40413

    Twitching vs Tremor?

    So i've posted here before, but i've sorta came to the conclusion that maybe what I was diagnosed with (ET) maybe isn't accurate. Over the past 8 or so years i've had a "twitching" finger. Basically my finger will twitch side to side (well thumbs too but my index finger on my right hand has been extra twitchy here the past week, probably due to some muscle/tendon problems from computer usage). It happens on both hands/sides. Sometimes my finger will just feel stiff (probably from computer use since im a Programmer) Otherwise my symptoms I get are: - Muscle Spasms everywhere (Ive had these since I can remember, a single muscle section will jump for a few seconds then stop) - Muscle spasms increase after overuse/stress - Eyelid spasms (all the time) - And then the twitches that I mention The neuro that saw me a year ago diagnosed with me ET. I have no family history of ET. My hands do shake slightly when holding something, which is what I think she based the diagnosis on. (I did the writing/spiral test to show my writing was sorta sloppy but I was SUPER nervous that day so my hands were wayyyy more shaky than normal). Finger-nose test was good, also I had 2 MRI's 6 and 7 years ago (Which ruled out MS, not to mention these symptoms are constant but basically no really progressing which also sorta rules out MS). My question however is with a "Tremor" like with PD or Parkinsons...shouldn't it be rhytmic? When my fingers twitch/shake, it's jumpy and not really a consistent shake. It's very twitchy like with a different frequency and amplitude. I do not have a twitching/tremor or w/e at rest although occasionally at rest (especially when im particularly stressed or my fingers/hands have been overused a lot) i'll get like a single "jump" in my finger. But maybe thats more of just like the muscle spasms I get (Since fingers don't have muscles right? so the tendon/muscle is actually the thing spasming). However I never get multiple twitches or tremors at rest it's always like a single jump or two. But 99% of the time it's when im holding my fingers in a certain position against gravity. Im 32 years old, have no slowness/gait problems (I did have some slight dizziness 6 months ago but I think that was anxiety), fine arm swing/etc..... I have no other symptoms that seemed like PD symptoms (Neuro didn't see anything a year ago). I guess im just slightly anxious about it being PD from the rest "twitch" I get occasionally. but Like I said...it's a single surge or two, not a tremor at rest and 99% of the times it's positional. I remember reading somewhere that the "sudden jerks are not typical of PD". Does this sound like PD at all? I know I was diagnosed with ET...but it feels maybe more like BFS (since i have the muscle spasms). I dont care if it's BFS or ET since they are benign. Im just slightly worried. The only thing remotely like PD I have right now is a slightly stiff index finger (but I type all the time and have been under a ton of stress here lately) Sorry for the long message, thanks!
  15. matt40413

    Diagnosed with ET but not so sure?

    It's funny you mention dystonic tremor because I do get twitches in my neck/head where it'll feel like a quick spasm which will twitch my head barely. It's like a quick muscle spasm. It's usually worse of course when i've been working at the computer a lot otherwise I generally don't feel it. I looked up focal dystonia in the fingers and it seems like they have similar symptoms (Twitching if their fingers are in a certain position) and I can feel the pain when I bend my fingers very far down or back for example (Maybe it's CTS...who knows). It is reassuring it sounds like ET, the only symptom I have is really tremors in my fingers at certain positions (and that's not even a rest tremor technically). Honestly though Im really curious if it's an actual tremor, since it's not "rhythmic", it's sort of twitchy but the amplitude and frequency do not stay the same. Not sure what really constitutes one way or the other. When I see tremors on youtube videos for PD it's very rythmic. Mine is very twitchy back and forth (as in it stops/starts intermittently, and my fingers won't move the same distance when they twitch/etc....) Last question though: you say "The dizziness doesn't sway me one way or the other", I thought postural instability was a PD symptom? or is it usually only something that happens later on in the disease (When PD is very obvious) so that doesn't really "fit" here? Since my balance/gait are actually fine (My wife even did the "pull" test on me where you pull me back to see how many steps it takes to regain) and even with a forceful pull It still only took me a step or two to regain balance). My "dizziness" is really just that feeling of feeling off-balance...but really not being off balance. Also thanks so much for answering my questions!
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