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hiker

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hiker last won the day on February 4

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About hiker

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  1. what does the botox do? will it help your hiking?
  2. I find the metronome is really helpful. I set it to about 125 - 130. It is an app on my phone so I just play it and stick it in my pocket. It helps with gait and arm swing. I don't use headphones but I suppose you could. I use it as part of my PT, like when I take a walk around the block on the road or sidewalk. My lag is sometimes noticeable to others but often not. But the subtle feeling is always there when walking on flat surfaces. When I hike I do have to be mindful of not tripping...I watch the ground more often rather than the scenery! But I don't feel the lag. I find the ropinirole really helps with my fine motor (typing) and foot lag. I am 55 and was diagnosed about 2 years ago. So far very slow progression. My husband and I are doing a lot of hiking and biking and xc skiing 'cause we just don't know what the future will bring.
  3. Thanks this is very helpful. I am a big hiker and also find that hiking up and down mountain trails is much easier than, say, walking through the airport. My left foot/lower leg lags behind slightly when I am walking on flat surfaces, and I need to focus to keep my stride even. Using a metronome helps. I don't notice it much on hiking trails, just on flat surfaces. And my stiff hiking boots are the best. Luckily my toes don't curl under yet. I also cross country ski and recently switched to stiffer backcountry boots and skis. It has made a huge difference and I can ski with no problem on the steepest XC ski trails in Vermont and NH. With the stiff boots I can easily herringbone up the hills and ski the turns on the downhills. I'm hoping to continue hiking and skiing for years..........the 2 mg ropinirole 3x day definitely helps!
  4. And what about isradipine....since it might slow progression do you recommend taking it?
  5. Shop Guy thanks! What do you mean by "off label". And did your neurologist or your Primary Care prescribe it? What dosage do you take?
  6. hiker

    TUDCA

    HI, I just read another post about the potential benefits of UDCA or Ursidiol, and that TUDCA is available over the counter. Is this something worth trying? If so what dosage? And any side effects or interactions to be aware of? Thanks!
  7. hiker

    TUDCA

    HI, I just read another post about the potential benefits of UDCA or Ursidiol, and that TUDCA is available over the counter. Is this something worth trying? If so what dosage? And any side effects or interactions to be aware of? Thanks!
  8. What is TUDCA and UDCA? I am not familiar with these? Are they supplements? How do you know how much to take and when?
  9. I've been on ropinirole 1.5 mg 3x day for six months, but my gait issues are returning. So would you recommend adding amantadine to the ropinirole, or just switching to Sinemet? I'm 55 yrs female, very active and want to stay that way. Thanks,
  10. I have been taking 1.5mg Ropinirole 3x day, and Rasagaline 1x day since April with few side effects and until recently, excellent control of symptoms. But I have noticed over the past month or so that my gait is off and my fine motor when typing is deteriorating again. I am super active biking, hiking, skiing, and I work 30 hours/week. I am 55 years old and in good health. I don''t have any cognitive symptoms and have tons of energy. Also no tremor. Should I a) increase the ropinirole?, or b) switch to the c-l levedopa? My neuro says it is up to me. But I don't know how to decide? Thanks!
  11. I have been taking 1.5mg Ropinirole 3x day, and Rasagaline 1x day since April with few side effects and until recently, excellent control of symptoms. But I have noticed over the past month or so that my gait is off and my fine motor when typing is deteriorating again. I am super active biking, hiking, skiing, and I work 30 hours/week. I am 55 years old and in good health. I don''t have any cognitive symptoms and have tons of energy. Also no tremor. Should I a) increase the ropinirole?, or b) switch to the c-l levedopa? My neuro says it is up to me. But I don't know how to decide? Thanks!
  12. And...do any of these cause lightheadedness?
  13. Thank you! Are the results more effective if you take all three drugs? The reason I am asking is because I have a 20 year history of insomnia and I'm a bit worried about the green tea.
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