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GeorgeNW

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About GeorgeNW

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    Seattle

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  1. Thanks for your detailed answer. Yes my MD suggested slow approach starting with 2mg and increasing to 6mg over a period of 3 weeks. I guess I will start soon with hope if avoiding scary side effects.
  2. What is a benefit of starting Requip XL and not sinemet? Right now I am taking azilect 1mg which helps a little with slow movement and stiffness. Tremors are not affected. Reading about side affects and evaluating should I ask MDS to try sinemet first just to see what will be improvement. Is it common to have a success with Requip XL over a long run( year or more ) or it just usual transitional phase to sinemet . I am 38 year old and diagnosed 5 months ago. Need to start meds to keep functioning at work.
  3. Thanks Silversurfer for link. it helps to have some structure in notes. Beau's Mom, i was surprised how many YOPD we have in Seattle area along. Maybe lack of sun plays a big factor contributing to PD cases here. mainly i am meeting people through Arcaro boxing Parkinson class in Seattle .They have morning Saturday classes which fits my working schedule.
  4. Thanks Dianne for suggestion, i will check Patients Like Me. I am enjoying Rainier views when i am crossing bridges, but picture in avatar is Mount Fuji. Took it during my Japan trip with my son last May - few months before diagnosis. I already had a feeling that something wrong with me in a big way, so mount Fuji is a starting point of PD journey for me and i hope to climb this mountain for a while
  5. Hello, Are you self documenting you progression, symptoms, drug side effects? I found for myself that it is hard to look back 3-6 months from now and quantify to tell what i had and how i progressed. i believe that it should be beneficial to have some sort of journal and reference to look into once in a while. Medical record format is too narrow and frequency of MDS visits not allowing to have detailed picture. Does anyone found it useful and have enough self discipline and habit to keep such records for long period (> 12 months). If yes can you share your advise to make it useful and how to stick to it?
  6. GeorgeNW

    Got my 23andme results

    I did my 23andme tests couple months ago and they didn't find anything as well. No relatives with PD, but in my case it is really hard to to track my ancestry tree deeper than grandparents. I didn't started meds right after diagnosis with idea to postpone them as much as possible. definition of 'unmanageable' is very personal and depends on your occupation, level of stress and type of symptoms. 5 months later i am at point that i need to do something to be productive at work. i guess it will be completely different perspective if i will be closer to retirement when my kids old enough not to be dependent on my income.
  7. Does anyone has experience using hands free mouses?
  8. Does anyone have experience using hands free mouses?
  9. GeorgeNW

    Freezing when using computer mouse.

    Hello Silversurfer, i have same problem.Diagnosed in July 2017, but started noticing symptoms in 2016. before shoulder freeze and problem moving mouse and typing, i had right hand muscle pains and was blaming carpal syndrome. my right side hand tremors are not that often when i am sitting and typing. I guess need to start using Dragon naturally Speaking software.
  10. GeorgeNW

    Just got the news 😕

    Hello Bluelion, i am father of 4 (4,9,13,15) diagnosed 4 months ago at 38. Still adjusting to my new symptoms. First month was a worst for me and now i am emotionally in much better shape .Humans are highly adaptive species, so I guess key is enjoy present moments you have and try not to blame yourself. I think there are quite a few more nasty deceases and life situations. It is also good filter to validate your relationships. I am financially worry about my kids, but at the same time they are biggest bright angels of my life and purpose to keep moving.
  11. Hello Sherrie, i found a link on mjfox foundation blog which i am not able to find now. here is 23andme page describing genetic sub study - https://www.23andme.com/pd/. Official name of sub study was "Fox Insight Genetic Sub-study". It seems there is recent more broad announcement https://blog.23andme.com/news/new-parkinsons-disease-research-collaboration-michael-j-fox-foundation/. As i remember when i register in fox insights there was a button join sub study or something like this. I had to provide personal information and state that i have PD diagnosed by doctor, then there was a big base study i had to fill (more than 100 questions). Sorry that i can't provide more specific details since i found it just by browsing mjfox blog or twitter. Trying to find genetic substudy form i found form for wearable substudy mentioned in my question https://www.michaeljfox.org/fox-insight-form.html. I will try to find original substudy page or from i used and i will update this thread if i will find it.
  12. Thanks PatriotM for response, Did you research any apple apps for this purpose? Technically Apple Watch has all sensors to measure and just wonder if someone created app specifically for tracking tremors.
  13. Hello, received my DNA health and ancestry results from 23andme.com. Parskinson patients can get it free through https://foxinsight.michaeljfox.org. Does anyone who participated in FoxInsights had chance to receive smart watches to track tremors? Was surprised to see that only 40 people participated in age group 35-44. Hoping more people to share their DNA examples, so computers eventually can crack a Parkinson problem. Reviewing ancestry reports is fun. Are you using any tracking or fitness devices to track your PD exercises, symptoms such as tremors.
  14. GeorgeNW

    Coffee intake triggers shaking

    I am not taking any meds yet. And i usually have coffee at work -one hour after my breakfast.
  15. Hello fellows, I started noticing link between coffee intake and overall shakiness in my body. In mornings few minutes after coffee i starting to shake(arms,legs,neck) and have overall feeling of light tremors. Main difference from regular tremors is that it's affecting all my body. This shaking last around 1-2 hours. In contrast green tea doesn't trigger any reaction and give me feeling of energy boost. When i skip coffee all above symptoms are gone and i have regular days with few periods of hand tremors and general right side stiffness. How does coffee affects your PD symptoms?
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