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About amy2beth

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  • Birthday 12/19/1976

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    Franklin, WI

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  1. amy2beth

    Got my 23andme results

    Thanks everyone for your feedback! As for the dna testing I got it done free through Fox Insights. I agree- I don’t think the testing is very extensive.
  2. amy2beth

    Got my 23andme results

    Hi, Just wanted to share that I received my Fox Insights 23andme dna results back. I did not have the 2 Parkinson's genes they test for. Go figure! Doesn't make it go away, but good to know I guess. Also, I saw a movement disorder specialist and had a datscan that confirmed early-onset Parkinson's but she wants to hold off on meds until my symptoms get unmanageable. Has anyone else's doctor suggested this? Lastly, do any of you feel way more anxious, shaky, jittery when you are sick? I have a horrible cold and have felt wretched for a week. I don't recall cold viruses affecting me that way before diagnosis. Thanks everyone!
  3. amy2beth


    Thanks. I had a test done that showed I had gliadin antibodies which means although I’m not celiac, I have sensitivity. When I skip and eat gluten I feel way worse. Just wanted to see if that was case with other PD sufferers.
  4. Thanks MelissaB. My local YMCA has Barre3 and now I'm going to check it out..
  5. amy2beth


    Hi All, Has anyone found that eating gluten makes symptoms worse?
  6. amy2beth

    Just diagnosed at age 40

    Thanks everyone for the great advice! It's comforting to know there are others that are going through the same thing.
  7. amy2beth

    Just diagnosed at age 40

    It feels like my shoulders, hip and back are tight ...maybe it's more muscular pain than joint, but nonetheless, pain.
  8. amy2beth

    Hand tremor when nervous, anyone else?

    Yes, the second I get nervous my finger and thumb start going nuts. You're not alone!
  9. amy2beth

    How did you talk to others?

    Hi Melissa, I'm in same boat. I''m 40 and was just diagnosed last week following an abnormal datscan. I'm scared, angry, confused...I see a movement disorder specialist Dec. 21st. The first neurologist I went to sent me an email saying I had PD. Nice, hey? NOT going to him anymore.
  10. amy2beth

    Need help, Hate knowing its Parkinsons

    Hi Lauren, I'm 40 and live in Milwaukee, WI and was just diagnosed. If you want to ever meet up, I'd be happy to!
  11. amy2beth

    Just diagnosed at age 40

    Thank you everyone for your kind words and advice. Not that I wish PD on anyone, but it's nice to know there are people in the same "boat." Does anyone know why we were the lucky ones to get PD?
  12. amy2beth

    Just diagnosed at age 40

    Thanks Jill! I think I'm over the initial "mourning" period now but some days are worse than others. I haven't been exercising because of my hip bursitis but now I'm wondering if the PD caused that. Good to know you can/are exercising. I need to find something that I feel comfortable doing regularly. Are you on meds yet?
  13. amy2beth

    Just diagnosed at age 40

    Hi, I am so glad I found this website because I’m just beside myself . I’ve been crying for the last three days trying to accept the diagnosis. I’m angry, confused and scared! I have my first appointment with a movement disorder specialist in December but until then I’m not sure what to do about the pain in my joints. Ibuprofen doesn’t seem to touch it . Any suggestions?