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Everything posted by tweets32

  1. tweets32

    CBD Oil

    Pdmanz, My sister lives in Arizona and she can get some from a dispensary and send it to me. I live in Maryland and apparently I have to go to a special doctor to get a card. My dad tried some oil from the dispensary in Arizona for depression and anxiety and it didn't seem to help. So are you saying that the CBD oil sold online is made from the hemp plant and the CBD oil from the dispensary is made from marijuana? Again, not really sure what that means. Also, in my younger days I tried smoking marijuana and got very paranoid. Was never able to really smoke or do any other drugs for that matter. It makes me wonder if the THC will make me more anxious. I'd really appreciate any further clarification because I really want to try this. Thank you so much.
  2. tweets32

    CBD Oil

    I have joined the CBD Oil Users Group on Facebook. They seem to have a lot of information. I am really trying to learn as much as I can because I am interested in trying CBD Oil mainly for anxiety. If I can get control of my anxiety, my tremors will be far less. I agree with pdmanaz. There is so much to learn and so many different types and brands of oil that it seems impossible to navigate. There is no standardization in the industry, no real scientific studies and some types and brands of CBD Oil may work for one person and not for another. I too would like to know if anybody has had success using CBD Oil especially in regards to anxiety and tremors.
  3. tweets32

    Tremor when nervous?

    Yes I can definitely relate to the mouth tremor. It starts with my tongue which starts to shake inside my mouth. This is what landed me in the neurologists office as well. The tremor can get so bad that it interferes with my speech. Plus it is downright embarrassing. It occurs a lot in the evenings when I'm tired but also when I'm in social situations. I am glad to know that other people have this problem. Manilo, I am not an expert on meds but my view is if you can live without them then that is the best thing. They come with a lot of side effects. I take the meds because if I didn't I would have tremors, along with other symptoms all day long. It is true that when you are anxious no amount of Parkinson's meds will help.
  4. tweets32


    I would be interested if anybody has tried this supplement also.
  5. I’ve been having a big problem with anxiety causing tremors in my body. I was diagnosed 3 years ago but this has been mostly happening in the past 6 months. I usually try to take deep breaths and divert my thinking so that I can calm down. I’m not always successful at calming myself down especially if I’m in a public place. As I get more anxious my whole body begins to feel weak and shaky and my toes curl up. Then my muscles start to tighten up and I feel like I don’t have the strength to walk upright so I walk hunched over. By this time I am having a full fledged panic attack. I seem to have higher anxiety in the evenings. When I’m at home I don’t know whether it’s better to lay down and try breathing exercises or try to start walking and moving Sitting in meetings in the evenings seem to be the worst. This almost always sets me off. If I’m doing an activity I seem to be much better. Sometimes I seem to be fighting anxiety throughout an entire day. I will have to spend the whole day breathing and practicing positive self talk. On these days I don’t know if it’s better to try to relax or try to do some exercise. One day I went to the gym when it was at tremor level only. I usually love going to the gym and thought the exercise would relax me but it didn’t help me at all. Finally I went in the indoor pool and I felt relaxed for the first time all day. I’m starting to feel quite apathetic because I have a very full life. I am only 55, still work and have been very involved in many activities. Now I’m becoming afraid to go places, feel very lonely and am even afraid to sleep because of my battle with insomnia. I do take an antidepressant and have recently had that increased due to my complaints about my anxiety. Does anybody else have this problem and if so, how do you deal with it?
  6. tweets32

    Anxiety causing tremors and off time

    I read that the best breathing for anxiety is inhale 4 seconds hold 7 seconds and exhale 8 seconds. That seems kind of hard to me I basically just practice slow inhale and then slow exhale. I try to be loosen up and stretch my joints if I’ve been sitting Practing some calming yoga moves will help at home also. I love Yoga with Adrienne which is free on YouTube. She has some short very easy videos for bedtime and stress relief. I literally felt asleep on the floor at the end of her sleep video,,,lol. They are very easy videos because I knew nothing about yoga and just started them myself.
  7. tweets32

    Anxiety causing tremors and off time

    Hi Otolorin, Antidepressants definitely do help. I have been on an antidepressant most of my adult life. Every antidepressant that I have tried has worked for me. Some work better than others. I was on Zoloft for several years and then spent 12 years on Lexapro before I felt like it was no longer working. My father and 2 of my siblings have struggled with the same problem and medication has helped all of us. In the past, doctors have cautioned that it may take 2 or 3 months to start working. However, some of the newer meds seem to work better. When I started the Cymbalta it seemed to start working within the first week. Many doctors may prescribe Xanax or Clonopin to help deal with anxiety. There is all kinds of negative stuff on those meds on the web and even if you talk to others because they are addictive. However, I have been on both multiple times and have never had a problem getting off them. Currently I use a low dose of Xanax only when I'm having a severe panic attack when no amount of breathing exercises will help. I have used Clonopin for the past few years to help sleep. My psychiatrist subscribed Trazodone 50 mg for sleep about 3 weeks ago. I quit taking the Clonopin. No withdraw or bad side effects. By the way, Trazodone is great because it is non-addicting and has very few possible side effects. I have no guilt for relying on an antidepressant or an antianxiety med. I have to do whatever it takes to continue participating in life. Sorry I didn't mean for this to sound like a rant. It's just that so many people are quick to judge others for using these meds. They do not cure you but they certainely calm your mind down enough so that you can actually work on yourself. I also go to a psychologist, practice calming yoga, breathing exercises and lots and lots of prayer. Also if you do decide to get on an antidepressant, do NOT research it on the web. I've learned this the hard way. The first thing that will come up is all of the negative side effects possible. If you go to the forums you will read lots of horror stories. I have never experienced any bad side effects from any antidepressant that I've been on, other than the one that I researched and got myself all fearful about taking even before I took it...lol. There's been minimum side effects like dry mouth, hunger or tiredness but they all went away when my body got used to the med. Pretty much the same thing when taking Parkinson's meds which I think can have even worse side effects. Okay, I'm done with my lecture. Sorry, this is a hot topic with me because I've heard so much judgement from people who don't understand depression or anxiety. To answer your question about my Parkinson's meds, I am currently on 1 1/2 tablets Carbidopa-Levadopa 25-100 along with 200 mg Comtan every 4 hours or 4 times a day. Please feel free to message me if you have any questions or if you run into any issues if you try to take an antidepressant. Blessings! Robin (tweets32)
  8. tweets32

    Anxiety causing tremors and off time

    Thank you all for your input. It is so good to know that I am not alone. I was feeling like I was a very weak minded person. I don't know why but it makes me feel better that other people are struggling with the same thing. This is a very humbling disease. I will keep on with the breathing exercises. I went for a long walk today while I was anxious and that seemed to help. However, I noticed that if I do intensive exercise it seems to have the opposite effect. That to me is a loss because I've always loved to exercise, mainly because a good workout produces endorphins and I would leave the gym flying high. Just one of the things that Parkinson's has stolen from me. I don't want this disease to stop me from doing everything else in my life because of my fear of tremors. Otolorin, I am on Cymbalta 90 mg. Yes it does help with depression and anxiety. I was on 60 mg for the past year and was doing fine. It was just recently upped to 90 mg because of my increased anxiety. I have to take it in the morning because it seemed to cause insomnia when my dose was increased.
  9. tweets32

    Tremor when nervous?

    Thank you so much for this topic. I have the same problem. If it continues I get more anxious and then my whole body feels weak and shaky. Then my muscles start to tighten up and I feel like I’m hunched over. By this time I have a full fledged panic attack. Last night I had to have a friend drive me home. I seem to have higher anxiety in the evenings. When I’m at home I don’t know whether it’s better to lay down and try breathing exercises or try to keep on walking. I am also not good sitting in meetings at night. This almost always sets me off. Doing an activity seems to be much better.
  10. tweets32

    alcohol and tremors

    I'm not a doctor but it sounds like you might actually have essential tremor. I would seek a second opinion from a highly rated Movement Disorder specialist. I was initially diagnosed with essential tremor by a neurologist. I went to another neurologist who specializes in Movement Disorders and was correctly diagnosed with Parkinson's. I know this because the medicine worked for me. I had done some research when I thought I had essential tremor. The disorder involves only a tremor, no other symptoms. Surprisingly, alcohol is known to help with the tremor! Like I said, I am not a doctor but I would definitely get a second opinion.
  11. tweets32

    Early PD and vigorous exercise

    This exercise post is near and dear to my heart. I am 55 years old and in pretty good shape. I have always been physically active. I've been involved in martial arts for years and I also enjoy going to the gym and lifting weights, among other things. I was diagnosed about 3 years ago. Even before my diagnosis I was starting to slow down on some of my activities because of excessive fatigue. I still go to the gym and my martial arts classes. I just don't try to be superwoman anymore. When I read that study that says intensive exercise will stop progression of the disease I was excited and thought "Yay! This proves what I already believed" because my progression has seemed to be slow so far. So I jumped on the bandwagon and increased my exercise. I enrolled in some classes at a local MMA school called "Fight Fit" which is basically an extremely difficult HIIT class that lasts for an entire hour. I was very proud of myself when I made it through the first class. However, this was not without a lot of increased tremors going on and literally almost no energy to get myself in the car and drive the 2 miles back home to my house. The next day I was exhausted and I felt like every last bit of dopamine had been wiped out of my body. Hmm...I thought exercise was supposed to make you better and increase your dopamine production. Where are those endorphins? I don't like to give up because like I said...I'm hardheaded, I'm a woman and I think I can be superwoman. The article says I need intensive exercise will make me better so I'm not giving up. I ended up going to 2 more classes. When it was time to go to the next class I literally cringed inside. I couldn't bring myself to go and do that to my body again. I loved the actual exercise and the comaraderie of the other women in the class. But I just felt sooo bad after the class and the next day. My symptoms actually started getting worse and then I started feeling depressed. Yes I know that I can do other exercise but I've actually been having a hard time in some of my martial arts classes lately because of an increase in tremors. I actually quit my Saturday class cause they practiced for 3 hours. I have felt like a failure because I'm now doing less exercise than I was before diagnosis. Yet everybody tells us that you must do intensive exercise. I talked to a friend who's had this disease for 25 years. She made me realize a few things about this "study" that is posted all over the internet. 1) This is not a scientific study by any means. 2) Everybody progresses at a different rate so you can't compare one person to another. 3) There's no way to determine how much somebody would have progressed in 6 months if they had not done the exercise. Seriously, there's no baseline. Six months is a very short time in the space of a lifetime. They might not have gotten worse during that time. 4) What the hell is "intensive exercise?" The study doesn't even mention how long the subjects exercised for. Obviously intensive exercise will be different for every person. So I decided I'm not going to let myself get depressed because I can no longer do "intensive exercise". I'm going to continue doing whatever I can. I'm really sick of all the people who post pictures of themselves doing bodybuilding, running marathons and similar things and trying to tell the PD community that they are not progressing because they are doing this intensive level of exercise. Maybe the truth is that their disease is progressing slowly so therefore they have the ability to continue working out like that and not the reverse. Seriously, an entire year before I ever had a tremor or other symptom of PD I suffered with extreme fatigue. At the time I was going to the gym doing a five day split, lifting very heavy (for a 110 pd woman). I was so tired in the evenings, I could barely make dinner for myself and my teenage son, then I would be crawling into the bed. My mom kept telling me to go see the doctor because that wasn't normal. Of course, I refused because I thought it was just because I had increased my weight lifting routine and I just needed to get used to it. I didn't want to quit because I had a goal. Anyway, the doctor's would have never figured out what was wrong with me even if I had gone cause I was misdiagnosed even when my tremors started manifesting. I'd like to end all this rambling to say that PWP should always keep moving and do whatever exercise they are capable of doing even if it's just walking. Yes, it will help you to feel better and probably help to keep your muscles from becoming rigid and locking up on you. However, there is no scientific evidence that it will keep you from progressing. Likewise, you are guaranteed to feel like crap if you give up and lay in the bed all day.
  12. tweets32

    Early PD and vigorous exercise

    The Rock Steady program in the Baltimore area actually wanted $160 per month and they only have classes on M, W & F at 11 am. I was shocked and kind of angered because I really wanted to join that program. But the cost was outrageous and the class times were impossible for me. I still work full time although I do have some telework days. Not surprisingly they only have 5 people in the class. The man running the program has Parkinson's also. He claimed that he had to charge that much or he wouldn't make any money. I'm not a business genius but if you only have 5 people in the class paying $160, wouldn't you make more money if you could enroll 2 or 3 times that many people paying $80 a month. I would have joined it for that. Plus, with more people you could have more classes, preferably some in the evenings or weekends.