Jump to content
helplinedonate

cereus

Members
  • Content Count

    77
  • Joined

  • Last visited

  • Days Won

    2

cereus last won the day on January 17

cereus had the most liked content!

Community Reputation

17 Good

About cereus

  • Rank
    Advanced Member
  • Birthday 06/10/1957

Profile Information

  • Gender
    Female
  • Location
    Arizona, USA
  • Interests
    gardening, visual arts, sewing & textile arts

Recent Profile Visitors

1,493 profile views
  1. I don't see an attachment icon, so here it  is:

    LEAN ON ME CLUB 

     

    Lean on me when you're not strong and I'll be your friend, 

     I’ll help you carry on 

                                                                                     Lyrics by Bill Withers 

     

    1. Listen/talk hold a hand, give your heart.  If someone is down or upset, express concern or if happy, rejoice with them. 

    1. Meet, greet and eat.  Welcome a new person, introduce yourself, offer to escort them to the dining room for lunch or dinner.  give tips that are helpful.  Point out things of interest. 

    1. Line Dancing:  Lesson are on YOU TUBE.  Make friends, exercise and have fun, all at the same time. 

    1. Watch TV together.  There is a lot of alone time, especially at night.  Pick a night, a recurring program and make some popcorn. 2 or more people. 

    1. For the night owls: Scheduled or Last-Minute games.  Cards, Dominoes, Yahtzee, Wii bowling or golf or just chit-chat.  Just don’t sit alone, get together and have fun.  9pm to 10pm 

    1. Help find lost remote control or eye glasses.  No crawling on the floor.  Use a “grab it” stick. 

    1. Remind a friend.  Call or knock on a door to remind someone of a planned activity.  

    1. Canasta or bridge club.  Schedule at a time that allows club to eat lunch together, before or after game. 

    1. Welcome Back Visit.  When someone returns home from the hospital or rehab, let them know they were missed and thought about and people are glad they are back. 

    1. Devotional Read scripture, pray, discuss or whatever suits your belief system. (may need more than one group) 

     

     

    Benefits: 

    Create and/or solidify friendships 

    Gives a sense of purpose, thereby decreasing depression 

    Scheduled activities and self-motivated tasks relieve boredom 

     

    1. So Curious

      So Curious

      If you have started a PD support group, you might be interested in my previous post from July 23 2019, "PD:  Things You Should Know Now."

    2. cereus

      cereus

      Thanks @So Curious, I’ll check this out!

    3. cereus

      cereus

      The list is outstanding @So Curious! Thanks so much! I will print this out to distribute at the next meeting. Coincidentally, I am hoping to join a line dance class that begins next week.

  2. I am happy to share the list with you.  I will type it tonight and send it to you.  Is this a PD support group or something else?

    1. cereus

      cereus

      Hi @So Curious!

      I’m sorry, I am only seeing your response just now. For some reason, I did not receive an email notification. It is a PD support group. I am not a resident at the care center, but all the other attendees are. 

  3. @So Curious Would you be willing to share your list? We have just started a support group at a care center in our town and such a list could be very helpful. And good luck with getting your group started.
  4. Thanks for this reassurance, Mark. I have managed to get enrolled in their copay program. Now I will have to see if my insurance will approve it with a copay. I sure appreciate your help!
  5. Thanks so much, Mark! I sure appreciate your help. This is not what I had.
  6. Hi Mark, I posted this in the Ask the Doctor forum and someone suggested you might know the answer. (Dr. Okun has not had a chance to respond yet.) I have an appointment with the MDS on Monday and I suspect she may ask about this. My doctor has given me a Rx for Azilect/selegiline but my insurance won’t cover it. I found a form online for a patient assistance program and my doctor & I filled it out. Before sending a copy of my tax return out into the world of strangers, I decided to call the phone number to see if it was legit. The number was answered by an extremely cheerful robot who repeatedly tried to extract information from me and finally said the number had been changed, giving the new number. I find this highly suspicious. Could you kindly tell me whether they still have a patient assistance program for Azilect and, if so, how I could go about applying? Thanks so much. Diana
  7. Hi Dr. Okun, My doctor has given me a Rx for Azilect/selegiline but my insurance won’t cover it. I found a form online for a patient assistance program and my doctor & I filled it out. Before sending a copy of my tax return out into the world of strangers, I decided to call the phone number to see if it was legit. The number was answered by an extremely cheerful robot who tried to extract information from me and finally said the number had been changed. I find this highly suspicious. Could you kindly tell me whether they still have a patient assistance program for Azilect and, if so, how I could go about applying? Thanks so much. Diana
  8. I also cannot sleep if I take carb/levo in the evening. In our women’s support group, this seems to be a fairly common reaction. I am trying to get Azilect, but my insurance won’t pay for it. Can you give me more information about how you get it from India? Thanks. Diana
  9. These both look like wonderful events @Superdecooper!
  10. I am so sorry, Troy. It is not your fault. It sounds like you and your mother did everything you could to try to help and to get help. It is a tragedy and I'm sure was very traumatic for your family, on top of the grief you must feel over the loss of your father. The thing is, we are all doing the best we can, making the best decisions we can with the information we have, taking our chances. That's all we can do.
×
×
  • Create New...