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coacht last won the day on October 24 2017

coacht had the most liked content!

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About coacht

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  • Birthday 01/01/1970

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  1. coacht

    Loss of confidence

    MiracleSeeker, I think most of those days. Many days I have not wanted to go home and deal with my DW's attitude. I have been dealing with another situation and this week she has been kind and considerate. What a relief. I know she can be this way now, but how long will it last? Do what you can, don't worry about the others, they will get their reward in different ways for what they have and haven't done. Keep posting as that is a good way to let off steam. Coachj T
  2. Calliope, I guess a question is, how old are the two of you? I checked into long term care insurance ten years ago. My wife was already diagnosed and I could get it for $2,850 a year. It would pay out up to $100,000 over three years. The average person is in long term care an average of six months, so I figured on average we would collect around $16, 666. I put the money in a Roth IRA where we will get it back. In ten years alone now I was able to put the equivalent of $28,500 in the Roth, plus the earnings. It will be something you can use whether long term care is needed or not. That is what I did anyway. Coach T
  3. coacht

    Early DBS Study

    Kaydee, My wife had a honeymoon period of 30 days before the DBS was turned on. She needed no meds and was doing the best she had in years. Until it is turned on you may just think it is working if you have a honeymoon period like that. Also, people are gullible and will believe almost anything a doctor tells them, let alone whatever else they hear or see.
  4. My husband has recently been diagnosed with PD.  At this point I'm looking for a support group that will help me with what's ahead as well as caregiver support.  I live in Saint Augustine,  Florida.   


    1. coacht



      Are you on facebook? I am part of a young onset Parkinson's Disease group there. If you would like to join it give me your email or link to your profile. Also, The American Parkinson's Disease Group and the Parkinson's Foundation have local sponsored chapters you can find on their website. I have gone to a few of those, but they meet while I need to be working and my wife won't go. How old are you and you husband? Let me know if you have any questions, I've been through a lot over the last 17 years.


    2. Cindytivey


      Hi Mike, 

      Appreciate your quick reply!  My husband is 74 and I'm 63.  He's showed symptoms for a couple years but has just recently been diagnosed as the symptoms grew more intense.  I do work PT so can appreciate the problem with timing.  My husband actually isn't ready to commit to a group at this point but I feel I'll need the support.  

      I am going to a support meeting at Stars rehab this next Friday as I have the day off.  I'm sure you can be quite helpful with your history.  


  5. coacht


    Golden, I think if she switched the controller to where she couldn't talk and had an interview she would be approved with flying colors. 😀
  6. coacht


    We had a talk a week ago and she agreed to apply for disability. She is in her own little world, that's for sure. She doesn't get that no one in the family will ride with her driving because we don't think she is safe. She told me she could have driven on our vacation, right her reactions would do well at 75-80 miles per hour. Bradyphrenia has made its appearance over the last couple of months. She has done a different speech therapy, the Parkinson's Project. I can 't remember the name. She was doing her voice exercises in the car on our vacation. It was really painful to listen as it was so slow and she couldn't even say the words. Suddenly she took out her DBS controller and she could talk. I told her to leave it on that setting. Later I asked her, how often do you change the setting? She said she changed it every day like they told her too. Wow, not what was said. She was supposed to give the first setting two to three days for her brain to stabilize and then try the other setting the same way. If one was better for walking or one for speech use that setting when needed. Never trust your PWP to remember what was said at an appointment. She has had a steady decline in ability since the first of the year. Previously it would be a change, then steady for a while, then a change, then steady again. I told someone that when we were traveling it was like having a combination of a little kid and an old person. She is 53, so she shouldn't fit either category. Sigh.
  7. coacht

    Battery replacement

    Waruna, Insurance won't pay for a replacement any earlier so I doubt anyone has any experience with replacing it sooner. At least that is our experience. Coach
  8. coacht

    Life after DBS

    Chuck, If everything goes according to plan you will be able to do all of that. Make sure they put on the stimulator on the side away from where you shoulder a gun. That can be problems, infection, improper placement, programming problems. I do know that my DW would not be walking now and working some without DBS. They said she had the optimum outcome from the procedure. It is a matter of the risk you want to take and also, the disease will progress and DBS does not stop that, just gives you a reprieve. We are all getting older no matter what we do though. Coach T
  9. coacht


    Thanks GulfVet
  10. coacht


    Thanks Golden
  11. coacht


    Thanks Golden, I will look into it. She is making far less than that. I didn't even know it was possible. Coach T
  12. coacht


    My DW is working a little bit yet, but her ego is such that claiming disability probably won't happen for a while. Her voice is so soft I don't know how she will be able to do much, let alone how bad her executive function is getting. I don't think proving it will be a problem.
  13. coacht

    DBS Programming / Configuration

    A neurologist or a movement disorders specialist will usually do the programming. Often a manufacturer representative may be there also, but usually not all that often in our experience. The number of sessions depends on how well you respond, how good of job they do programming, and how the disease progresses. Hope that helps, Coach
  14. Hello all, This is something I have never seen mentioned and wondered if women or men for that matter have had increased sensitivity in their erogenous zones after DBS. My wife felt so much better after surgery that things in that area improved, then a year or two later as the settings were increased she became almost too sensitive to touch. Has anyone else experienced this? She is 53 and has not hit menopause yet. She had her battery changed out a few weeks ago and that went well. Coach T
  15. coacht

    The period at the end of the sentence.

    Genden, so sorry for you loss.