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  1. Dear doctor, Until now the medical literature as far as I can see does not clearly define the functions that are restored or worsened or left as they are by the DBS. To make it more clear we know ıt suppresses tremor and rigidity in the joints and involuntary movements by decreasing the daily intake of medication. but does it influence in positive or negative sense the symptoms such as cheek biting, drooling, eating the tong, dry eyes, dry mouth, slurred speech, loss of short term memory, not being able to find the words to speak, weak voice, loss of balance, weaker muscles, urological problems, nightmares and probably many others that do not come to my mind now. I personally think that most of these symptoms are negatively affected by DBS. Am I right?
  2. The Growing Parkinson’s Pandemic: Time for a Plan The recent forecasting estimates for Parkinson’s disease (PD) are staggering. If accurate, the numbers suggest an urgent need to wake up and recognize that we are on the cusp of an emerging pandemic (Okun, 2013). An epidemic is a widespread occurrence of an infectious disease, usually in a community and typically during a particular timeframe. A pandemic is a disease that is prevalent over an entire country or worldwide. The increase in the global number of people living with Parkinson’s should therefore appropriately be termed a pandemic. It is frightening to consider that in the world’s most populous nations, the number of people with Parkinson’s will double (Dorsey, 2018). These escalating statistics are fueled by a continuously aging population. Age is the unavoidable and undeniable risk factor underpinning the development of Parkinson’s. As life expectancy increases, so does the number of people living with the disease. In other words, if everyone lives to be 100, we will be dealing with more Parkinson’s diagnosis on the scale of a worldwide crisis (Okun, 2013). Ray Dorsey, MD, and colleagues at the University of Rochester Medical Center, a Parkinson’s Foundation Center of Excellence, pointed out in the January issue of JAMA Neurology that neurological disorders are now the leading cause of disability worldwide. The fastest growing disorder is Parkinson’s disease. Dr. Dorsey and his team showed that from 1990 to 2015, “the prevalence of, and thus disability and deaths owing to, PD more than doubled.” Dorsey and colleagues underscore that “the number of people with PD will double from 6.9 million in 2015 to 14.2 million in 2040 and that applying this same growth rate to the lower estimate by the Global Burden of Disease study (6.2 million in 2015) projects to a staggering 12.9 million affected by 2040.” In their Parkinson’s study, Dr. Dorsey and his team wrote that the most pressing Parkinson’s topics include: Preventing onset Increasing access to care Increasing funding for research Decreasing the costs of new treatments The bottom-line is that we need to unite our voices and to converge as a community right now. We need a balanced approach that addresses the short-term needs as well as the long-term plan for this growing pandemic. It is time to realize that unlike an epidemic, the Parkinson’s pandemic is not going away. Selected references: Okun MS. Parkinson’s Treatment: 10 Secrets to a Happier Life. Createspace, Amazon, 2013. Dorsey ER, Bloem BR. The Parkinson Pandemic-A Call to Action. JAMA Neurol. 2018 Jan 1;75(1):9-10. doi: 10.1001/jamaneurol.2017.3299. PubMed PMID: 29131880. You can find out more about our National Medical Director Dr. Michael S. Okun by visiting the Center of Excellence University of Florida Health Center for Movement Disorders and Neurorestoration. Dr. Okun is also the author of the Amazon #1 Parkinson's Best Seller 10 Secrets to a Happier Life.
  3. Kalpana

    Medical marijuana?

    Hi, I have a friend suffering from Parkinson's Disease and so far Carbidopa-levodapa is we all know for curing this disease. But I came across to this article saying that maybe it can help curing my friend's condition, is marijuana really helpful for medical issues? Any advice? Thankyou
  4. Hello My father is suffering from Advanced Parkinsons diease. My father has been taking sinemet and baclofen since last 3 years the dr told to give sinemet 3 times a day and baclofen 4 times a day 5mg last week i visit hospital and the doctor told us to give 20mg baclofen 3 times a day. the problem is when we give baclofen 20mg he get sweat badly. His body remain very very stiff... it doesnt relax him at all. In the beginning 2 days when i gave him sinemet and baclofen he was able to sit in chair. But now when we give him sinemet and baclofen together his body remain very stiff and out of control. Mean his left arm and leg remain extremely stiff that i cannot easily move them... his leg and arm remain straight and bcoz of that his body get slip and he is not able to sit on chair. we are moving country and we dont want to take my father in strecher. I want my father to sit in plane and travel Please guide me on how to adjust his medication so that he remain relax. As baclofen is for muscles relaxer but im not able to figure out which medicine shud give him first.. sinemet or baclofen? how these medicine must be adjusted so that he can sit and stay numb and dont move his arm and leg please check the attached medical report of him may be this will help u to understand his dieases... https://www.dropbox.com/s/3ynudwz8x2lekw1/Photo 1-29-18%2C 8 14 14 PM.jpg?dl=0 please i need ur guide on how to adjust his medication so he remain calm and no stifness on his body... shud sinemet be given first or baclofen? Your help is appreciated thanks
  5. Dear all, I am writing to you in behalf of my team that are currently working to develop a new, low-cost Parkinson wearable prototype on the upcoming humanitarian hackathon at CERN (The Port). Our goal of this wearable device is to track motor symptoms of Parkinson’s disease in real time to improve the quality for the individual patient and clinical diagnostics. The wearable will be available open-source, means anyone will have full access of our work in the future. This project is intended to build around Parkinson’s disease research and we would like to ask you a few questions and your opinion of wearable, which can help us to further improve our prototype. We appreciate to hear your input through our survey form created for this purpose: https://goo.gl/forms/GfL0xNRYooJNUsCB3 Thank you very much for your time! Best regards in behalf of Team Spes Spirae, Kitti ---- More about us, please read on: http://theport.ch/home/the-port-2017/ (Challenge 23: Wearable of Parkinson Development Monitoring) Link to Video that summarize this year’s challenges: https://youtu.be/zQXsOqeYb7w
  6. Dear Doctor, There is some discussion in social media about the benefits of taking Coconut OIl and Turmeric (Curcuma ) regularly. It is argued that these two substances help in the fight against brain diseases like Parkinson. There may not be any scientific proof yet, but is it possible to say that these arguments basis and if yes what can be the recommended daily intake for them. Thanks.
  7. The 10 Breakthrough Therapies and Treatments to Watch in Parkinson’s Disease A breakthrough is defined as a sudden increase in knowledge, improvement in technique, or fundamental advancement in understanding. Often breakthroughs occur when a formidable obstacle is penetrated. Breakthroughs are heralded as major achievements and they pave the road to meaningful progress in any disease. I have spent my entire professional career focused on Parkinson’s and related diseases. I have been blessed to spend much of my time taking care of patients, and I have evolved to understand the critical need for all those suffering to have access to information on breakthrough therapies. The point that I emphasize with my patients is that breakthrough ideas and therapies in Parkinson’s disease stretch far beyond a single drug or stem cell. There is, in fact, a broader and more exciting picture and portfolio of breakthroughs spanning drug, cell, vaccine, device, genetics, care, and behavior. Patients and families with personal investments in Parkinson’s disease should be informed and updated about all of the potential breakthrough therapies. “Every challenge you encounter in life is a fork in the road. You have the choice to choose which way to go: backward, forward, breakdown or breakthrough.” ― Ifeanyi Enoch Onuoha There are several potential breakthroughs that should be on every patient and family member’s radar screen. Here is a list for patients and families of potential Parkinson breakthroughs to watch http://parkinsonbreakthrough.com: · Disease Modifying Drugs and Biomarkers- these are drugs that may slow Parkinson’s disease progression; also imaging and fluid (e.g. blood, spinal fluid) markers that can track the effects of Parkinson’s drugs are needed and under development · Coffee, Tea, Exercise, Interdisciplinary Teams and Caregivers- there is mounting evidence that these approaches have symptomatic and perhaps even other benefits in Parkinson’s disease · Extended Release/Novel Delivery Systems for Parkinson’s Disease Drug and When to Start Drug Therapy- Parkinson’s disease desperately needs longer acting drugs to reduce the “number of pills” burden · Marijuana and Synthetic Cannabinoids- surprising to some experts has been the revelation that there are cannabinoid receptors in the brain and tickling them may be beneficial to some Parkinson’s disease symptoms · New Drugs for Hallucinations, Sleep, Constipation and Dizziness- these problems are vexing for patients and caregivers, but several new drugs are poised to make a difference · Therapies While Hospitalized and Avoiding Hospitalization- we now know that the hospitalization risk is very high in Parkinson’s disease, and that hospitals can be dangerous places for patients; the focus needs to shift toward avoiding hospitalizations · Advancing Deep Brain Stimulation Technology, Earlier Intervention and Dopamine Pumps- the technology has been refining our approach to the symptomatic management of Parkinson’s disease and new therapies are now reaching the bedside · Stem Cells and Stem Cell Tourism- there has been a shift away from the idea that stem cell transplants will cure Parkinson’s disease, however stem cells are proving powerful in drug screening · Prions, Spreading Proteins, Vaccines and Growth Factors- several novel approaches are in trial, and a Parkinson’s vaccine may be on the horizon · The Drug Development Pipeline- understanding the drug development pipeline will help patients and families to gain access to the newest Parkinson’s disease therapies Check out the new book 10 Breakthrough Therapies in Parkinson's Disease at www.amazon.com http://www.amazon.com/10-Breakthrough-Therapies-Parkinsons-Disease/dp/0692497412/ref=sr_1_1?ie=UTF8&qid=1443354908&sr=8-1&keywords=parkinson%27s+disease+and+okun
  8. mkhalid

    Neupro Patches

    Hi Dr Okun: Please find below my health summery. My question is regarding Neupro Patches as I am now seeking some alternative treatment options. Can I take Neupro patches while still taking the following medicines? If Yes, Please tell me which dose to start with 2 mg or 4 mg? I am looking to increase my "ON" time. Do you have any suggestion for me how can i prolong the ON time? I will be thankful to you. Age: 75 - Year 1. Idiopathic Parkinson's disease since 1997 (On Sinemet since June 2000) . Modified Hoehn & Yhr stage = 3-4 (when on) . Schwab & England activities of daily living scale 60 - 70 % . Levodopa induced Dyskinesia appears approx 1 hour after Sinemet intake 2. HTN 3. CAD / Coronary stents 2006 (3 Stents) 4. Inguinal Hernia - B/L Since year 2000 I have been taking Sinemet regular & CR, DA dopamine agonist Requip, Stalevo, Amantadine, Comtan, Rasagiline & SELGIN (Selegiline) along with Sinemet (levodopa/carbidopa) and alone. Above drugs worked well till 2008 (Levodopa side effects started in 2007) when motor fluctuations, wearing off, episodes of extreme slowness and stiffness started to appear besides dyskinesia and twisting movements. Duration between doses continued to decline and at present it has reduced to 2 hours (even less if we count the 1/2 hour in the beginning of dose). Present Schedule Of Medication: 7:00 A.M 1/2 tablet Sinemet Regular 25/250 mg, Requip 3 mg, Amantadine 100 mg 9:00 A.M 1/4 tablet Sinemet Regular 25/250 mg 11:00 A.M 1/4 tablet Sinemet Regular 25/250 mg 1:00 P.M 1/2 tablet Sinemet Regular 25/250 mg, Requip 3 mg 3:00 P.M 1/4 tablet Sinemet Regular 25/250 mg 5:00 P.M 1/4 tablet Sinemet Regular 25/250 mg 7:00 P.M 1/2 tablet Sinemet Regular 25/250 mg Requip 3 mg BED TIME MEDICATION: 1. Sinemet CR 50/200 mg 2. Uri-flor Capsule 3. Vitamin C 500 mg 4. Vitamin E Evion 400 mg 5. Revotril 0.5 mg (The above schedule adopted about a week ago is working with few episodes of drug induced Dyskinesia) Present Physical Condition: a) Have lost about 25 pounds weight during last 3 years. Suffering from severe constipation c) Rigidity of muscles & insomnia d) Difficulty in walking plus maintaining balance e) All the other symptoms which appears in advanced P.D Duration time between doses was constantly reducing and has come down to 1 hour 30 minutes Best Regards Khalid
  9. Después de intentar métodos no farmacológicos (mencionados en el post anterior), existen diferentes medicamentos que se pueden utilizar en caso de insomnio en Parkinson. Los medicamentos que se mencionan son en base a los estudios publicados hasta la fecha en pacientes con Parkinson. El abordaje inicial tradicional es agregar una dosis extra de levodopa, ya que se piensa que el insomnio puede ser secundario a dosis bajas de dopamina, sin embargo, no existe evidencia que esto mejore la calidad del sueño. La melatonina ha demostrado mejorar la calidad del sueño subjetiva de los pacientes, pero no cambios o medidas objetivas no han sido probadas científicamente. El parche de rotigotina (agonists de dopamine) mostró mejorar los síntomas nocturnos del sueño en el Parkinson, sin embargo, los efectos secundarios puedieran ser un problema. ​Un estudio reciente mostró que la doxepina (antidepresivo) y terapia cognitiva comportamental mejorar importantemente el insomnio. Sin embargo, los efectos adversos de la doxepina pueden limitar su uso. Recuerden que las recomendaciones que se emiten aquí en el foro deben platicarlas con su médico para siempre tomar la mejor decisión en conjunto. Saludos, DMR @drdanielmtz
  10. La siguiente cadena de tópicos que estaré publicando tratarán sobre los problemas del sueño en el Parkinson. Uno de los más comunes es el Trastorno conductual del sueño MOR (movimientos oculares rápidos) Como lo identificamos?? Se caracteriza por episodios repetidos de vocalizaciones y/o comportamientos motores complejos durante el sueño, como gritar, tirar golpes, patadas, saltar de la cama. El paciente los describe como sueños muy vividos, como si estuviera actuando el sueño. Aunque se sospecha clínicamente, para su diagnóstico se requiere un estudio del sueño (polisomnografía). Saludos, @drdanielmtz
  11. Hello, I'm a young male from Sweden with a grandmother with Parkinson Disease. I belive she recieved her diagnosis quickly 15 years ago at the age of 60. It started with pain in one of her arms and a week later the arm started to shake. Then she went on L-Dopa medication and the "shaking" disappeared and have yet to return. During these years she has been very functional and i got very surprised i was told she had it 8 years ago or something. She showed no signs like shaking limbs or involuntary movements, She may have had other symptoms others couldn't see though. She has been living alone for 8 years since my grandfather died. She lives very close to me and family though. However i fear her condition has gotten worse recent 3 years, especially in the recent year. She has developed more pain symptoms ( I guess it started when fell on icy ground a few years back and broke her left arm ), She has developed alot of involuntary movement when she is sitting still, She is forgetting more and more easily, She has the feeling "walking on clouds" which i know she has had for a few years atleast. She has taken L-Dopa medication for 15 years, started with 5 pills i belive, now she takes 10 or more ( depends on days ) She tried 2 other medications out, but had to stop becuase she got hallucinations from those. She is going to meet a doctor next week i belive. We will see what kind of plan they have for her then. Questions Do you have any advice what she should bring up to the doctor? Any tip or advice what we could do to improve her symtoms ? such as pain etc Have seen different stages of parkinson has been discussed on here, what stage do you belive she is in? Have anyone experienced hallucinations from Parkinson medications, especially taken closely onto pain meds? I feel bad i haven't joined a parkinson forum or similiar for her earlier, I just recently got the idea. I'm struggling with my own neurological issues ( which i belive isnt Parkinson though ) and been totally isolated in my mind. I hope i am allowed to write on this forum even though i am from Sweden ( If not, my apology ). I appericate all replies i get. I know there was more questions on my mind, i will make an update later with them when i remember. Robin.R
  12. TheDucks

    Vetivar Essential Oil

    Hello Katherine, I wonder if you have heard of using Vetivar Essential Oil or any Essential Oil for insomnia and Parkinson? Thank you
  13. Dear forum members, It is important to always talk to your doctor about the benefits as well as the potential and important neuropsychiatric effects of PD treatments. Below is a recent review article on the topic. Australas J Ageing. 2012 Sep;31(3):198-202. doi: 10.1111/j.1741-6612.2012.00632.x. Neuropsychiatric effects of Parkinson's disease treatment. Aarons S, Peisah C, Wijeratne C. Source Psychologist in private practice, Sydney, New South Wales, Australia. Abstract Advances in the treatment of Parkinson's disease have led to significant improvement in many of the disabling motor symptoms of the disease, but often at the cost of neuropsychiatric side-effects. These include psychosis, dopamine dysregulation syndrome, impulse control disorders, mood disorders and Parkinson's disease drug withdrawal syndromes. Such side-effects can be as disabling and have as much impact on activities of daily living, quality of life, relationships and caregiver burden as motor symptoms. Awareness of these potential side-effects is important both in terms of obtaining informed consent, and to aid early identification and intervention, as patients may not spontaneously report side-effects because of lack of insight, or deny them out of shame or embarrassment. The challenge of treatment can be a trade off between the emergence of such side-effects and the amelioration of parkinsonism, best mastered with an informed dialogue between clinician and patient. © 2012 The Authors. Australasian Journal on Ageing © 2012 ACOTA.
  14. The Breakthrough Therapies for Parkinson’s Disease Every Patient and Caregiver Should Know About Paperback and Kindle Versions Available at Amazon.com http://www.amazon.com/10-Breakthrough-Therapies-Parkinsons-Disease/dp/0692497412/ref=sr_1_40?ie=UTF8&qid=1441071806&sr=8-40&keywords=parkinson%27s+disease Ifeanyi Enoch Onuoha said, “every challenge you encounter in life is a fork in the road. You have the choice to choose which way to go: backward, forward, breakdown or breakthrough.” Since the publication of Parkinson’s Treatment 10 Secrets to a Happier Life with Parkinson’s Disease, the most common question we have received from patients is what are and what will be the next breakthrough therapies for Parkinson’s disease. A breakthrough is defined as a sudden increase in knowledge, improvement in technique, or fundamental advancement in understanding. Often breakthroughs occur when a formidable obstacle is penetrated. Breakthroughs are heralded as major achievements and they pave the road to meaningful progress in any disease. I have spent my entire professional career focused on Parkinson’s and related diseases. I have been blessed to spend much of my time taking care of patients, and I have evolved to understand the critical need for all those suffering to have access to information on breakthrough therapies. The point that I emphasize with my patients is that breakthrough ideas and therapies in Parkinson’s disease stretch far beyond a single drug or stem cell. There is, in fact, a broader and more exciting picture and portfolio of breakthroughs spanning drug, cell, vaccine, device, genetics, care, and behavior. Patients and families with personal investments in Parkinson’s disease should be informed and updated about all of the potential breakthrough therapies. So, “what will be the next breakthrough therapy?” Because of the complexity of the disease, each person possesses a different combination of bothersome symptoms. This complexity means that the answer to the next breakthrough therapy will vary patient to patient, and it could be a breakthrough in care as well as possibly a new device or drug. We have at the National Parkinson Foundation been monitoring the breakthroughs in the field. We run the free international Ask the Doctor web-based forum, and the questions posted have helped us to keep an accurate pulse on the field. Additionally, our blog called “What’s Hot in Parkinson’s Disease” as well as guest columns as the associate editor for the New England Journal of Medicine’s Journal Watch have provided the material, insight and inspiration for a new book; 10 Breakthrough Therapies in Parkinson’s Disease. Collectively, these experiences have provided focus for the topics in this book and in some cases the actual physical material. Several chapters include topics I have covered before, and in these cases I have added and updated information. The current book is an effort to provide a comprehensive review of the most important breakthrough therapies for Parkinson’s disease. Interestingly, these topics overlap with the most asked questions by patients and caregivers. The unexpected runaway success of my first book, “Parkinson’s Treatment: 10 Secrets to a Happier Life,” has provided hundreds of messages and an ocean of feedback from patients, families and researchers. The majority of comments I received on the first book were focused on the need to understand breakthrough therapies and approaches. My desire is that this book will fill a knowledge gap and will provide hope and valuable knowledge to those in the Parkinson’s disease community. Here are some of the topics that will be covered in the 10 Breakthrough Therapies for Parkinson’s Disease book released September 1, 2015: · Disease Modifying Drugs and Biomarkers · Coffee, Tea, Exercise, Interdisciplinary Teams and Caregivers · Extended Release/Novel Delivery Systems for Parkinson’s Disease Drug and When to Start Drug Therapy · Marijuana and Synthetic Cannabinoids · New Drugs for Hallucinations, Sleep, Constipation and Dizziness · Therapies While Hospitalized and Avoiding Hospitalization · Advancing Deep Brain Stimulation Technology, Earlier Intervention and Dopamine Pumps · Stem Cells and Stem Cell Tourism · Prions, Spreading Proteins, Vaccines and Growth Factors · The Drug Development Pipeline
  15. Hola foro, para comenzar el mes de agosto, les quisiera informar que se publicó recientemente un estudio mostrando que dosis bajas de litio reducen los movimientos involuntarios asociados a levodopa (discinesias) en dos diferentes modelos animales de Parkinson. Aunque aun en investigación con animales, sugiere un beneficio potencial terapéutico en el Parkinson. Esperemos los estudios posteriores. http://www.sciencedirect.com/science/article/pii/S0006899315004898# DMR @drdanielmtz
  16. Hola, Quisiera informarles que la FDA aprobó recientemente el Sistema de Neuroestimiulación Brio de la compañía St. Jude Medical. Se trata de una batería o generador de impulsos que se implanta en el pecho para deliberar electricidad por medio de estimulación cerebral profunda. Desde la aprobación de estimulación cerebral profunda parar el tratamiento del Parkinson, solo una compañía a estado en el mercado, la cual es Medtronic. Es bueno que exista competencia en el mercado con el fin de mejorar la calidad de los productos. Las ventajas del Sistema Brio son: 1) es la más pequeña del mercado mejorando la facilidad para colocarla y la apariencia cosmética y 2) su teconología proporciona al menos 10 años de terapia sostenida reduciendo el número de recambios. Consulte con su médico si es candidato a la estimulación cerebral profunda y posteriormente decidir cual bateria utilizar. Al final, queremos proporcionar el mejor tratamiento posible. Saludos, DMR @drdanielmtz
  17. drdanielmtz


    Hola comunidad hispana, Para pasar un buen fin de semana, les recomiendo la película Despertares con Robert De Niro y Robin Williams (QEPD). Es una película que abarca el tema del Parkinson y los inicios del uso de levodopa. Es importante conocer sobre su padecimiento para saber como atacarlo. Seguiré publicando temas recientes importantes sobre el Parkinson y espero poder responder todas sus dudas o comentarios. Saludos, DMR
  18. Aun se requiere de una prueba diagnóstica para el diagnóstico temprano del Parkinson. Un estudio reciente publicado en el Neurology mostró la presencia de agregaciones de alfa-sinucleína en la mucosa del cólon de pacientes con Parkinson y de personas sanas, sugiriendo que el depósito de alfa-sinucleína en el cólon no es una prueba diagnóstica útil en el Parkinson. Aunque esto pudiera desalentar a la comunidad médica, nos da pie a seguir investigando la utilidad de este biomarcador colónico. http://www.ncbi.nlm.nih.gov/pubmed/25589666 Saludos, DMR @drdanielmtz
  19. Queridos miembros del foro, Sabemos que las caídas son un problema frecuente en el Parkinson, resultando en lesiones y compromiso de la salud del paciente. Un reciente articulo publicado en Neurology (http://www.ncbi.nlm.nih.gov/pubmed/25552576) sugiere que programas de ejercicio enfocados en mantenimiento del equilibrio, fuerza de las piernas, y en mejorar el congelamiento de la marcha deben implementarse de manera temprana en el proceso de la enfermedad con el fin de reducir las caídas. Pueden encontrar mas información sobre el ejercicio en Parkinson en los libros de la NPF (http://www3.parkinson.org/site/DocServer/Consejos_Practicos.pdf;jsessionid=EDD260C70617577E44DE932AD61DF084.app328a?docID=195) Saludos, DMR @drdanielmtz
  20. Hola comunidad hispana de la Fundación Nacional de Parkinson!! Soy el Dr. Daniel Martínez, y estaré a cargo de la sección "Pregúntele al Médico" para contestar y aclarar todas sus dudas. Espero hacer de este blog una método de contacto continuo entre nosotros con el fin de proporcionarles tips para mejorar su estilo de vida y sobrellevar de una mejor manera la vida con Parkinson. Como primer post, quisiera recomendarles el libro que publicamos titulado "10 secretos para vivir feliz con Parkinson" que lo pueden conseguir en amazon.com... aqui el link http://www.amazon.com/Parkinsons-Treatment-Spanish-enfermedad-Parkinson/dp/1482772965/ref=sr_1_1?ie=UTF8&qid=1434983482&sr=8-1&keywords=10+secretos+vivir+feliz Estaré publicando diferentes temas con el fin de ayudar a entender mejor este padecimiento. Les mando un cordial saludos y espero un gran respuesta de la comunidad hispana en este blog. @drdanielmtz
  21. The mother of my son gave him up for adoption because of his father's disease; that was and still is Parkinsons. With this kind of stigma attached to such a disease, it was no problem for an agency coersing the mother into the adoption. The fact is, that Parkinson's is not socially acceptable by the adoption world. And they try to use it as a tool: When proof is provided that an adoption attorney [***** *****}] outright lied to the New Jersey Supreme Court’s Disciplinary Review Board, [Doctor report refutes his testimony] one should not receive a letter from [****** *********}] of the State Office of Attorney Ethics, such as the following: “Receipt of your Attorney Ethics Grievance form dated September 2006 is hereby acknowledged. Please be advised that your former case was reviewed by the State Supreme Court Disciplinary Review Board and your grievance was reviewed by {****** ********}. Based upon all evidence presented, your grievance is being dismissed. I also referred your matter for review by a public member (I.e., non-lawyer) of this Committee. The public member agrees that your grievance, even if true, would not constitute ethical misconduct or incapacity Therefore, our file in this matter has been closed. A copy of the New Jersey Court Rule is attached.” Here is the New Jersey Court Rule 1:20-3 D [3]: “The secretary, with concurrence by a designated public member, shall decline jurisdiction if the facts stated in the inquiry or grievance, if true, would not constitute unethical conduct or incapacity.” When an executive director of an adoption agency [****** *******] is found by theDepartment of Human Services to be conspiring by “providing false information on behalf of an attorney” [**** *****] a ruling should not dispute sworn statements such as the following: Children of the World Adoption Agency Verona, New Jersey State of New Jersey, County of Essex: “I {***** *****}, being duly sworn, according to law, deposes and says, 1. I am the executive director of Children of the World, a licensed New Jersey Adoption Agency. 2. That [****** ******] Esq., has contacted me concerning the ethics complaint filed by David Archuletta and that I am fully familiar with the facts of this case. 3. That [******* ******] Esq. spoke to me at the end of December 2001 and informed me of the letter dated December 21, 2001 from [birth mother] to his clients that was forwarded to him. He read the letter to me over the telephone 4. Children of the World decided that we would not have any further dealing with [birth mother] because of her extortion attempt Additionally, the policy of Children of the World was not to attempt to contact a birth father who was named, as we believe that the New Jersey law places the burden upon the birth father to amend the birth certificate or commence a paternity action within 120 days of the date of birth. Therefore, even if we had known his name, we would not of taken any action Signed, [****** ******}, M.A. C.S.W. Executive Director. Sworn and subscribed to me this 24TH day of December, 2004. [Notary Public].” When is a signed, written and notarized affidavit considered to have no credibility, as opposed to an unrecorded phone call conversation claiming otherwise? [******* *****} of the Department of Human Services: His belief in the executive director's verbal claim as opposed said affidavit she provided to the Office of Attorney Ethics of New jersey.] This executive director was now caught in a “Damned if YOU do, and a damned if you DON’T,” situation. This is when Board President [ ******** ********] committed corporate suicide.
  22. Kim Mardis


    My great Grandmother on my father's side had Parkinson's, my father was recently diagnosed at almost 70 but had symptoms for the last 3-4 years that was thought to be a stroke, his sister, a year older than he, was diagnosed with ms at 35 and was completely bedbound by 55. Are there types of illnesses that are heredity? My father has Psoriasis as does my sister and myself and hypothyroid in our 40's.
  23. Dear Dr Okun, Congratulations on your recent recognition as Champion of Change for Parkinson at the White House http://parkinsonsaction.org/white-house-champions-of-change-for-parkinsons/ Thank you for your time answering questions and providing education on this forum
  24. Hello! My name is Oana and I would like to address a question on behalf of my mother. Unfortunately, she cannot speak for herself and that is why it is me, her daughter who will seek for advice and guidance. My mother has been diagnosed with Parkinson 7 years ago-at the age of 59; the symptoms were tremor and muscle rigidity in the right hand. She coped well with the symptoms and she used to be a highly active person, very talkative and very ambitious, doing daily exercise to keep fit (she wanted to have a knee replacement as she suffered from bilateral gonarthrosis). In February last year, she agreed upon a change of treatment for Parkinson (duodopa pump), although the Parkinson symptoms did not get worse. She was still with PD stage 3 Hoehn and Yahr scale. This was the starting point for the dramatic changes that marked the second half of last year. She was sleeping almost all day long, she was drowsy all the time. From a highly active person, rational, who was able to use electric appliances and take care of herself, she gradually became unable to take care of daily tasks. She became unaware of time, of how to use the phone or the TV remote control, she couldn’t do her daily crosswords anymore. Taking care of herself was no longer possible. These things became visible gradually from May last year and we realized the full dimension of the changes in August-September. First she started complaining about small things like not being able to use the phone or the remote control. Then she was not able to watch TV anymore, couldnt focus and couldn’t take care of herself. From a very talkative person she became quiet; it is impossible to get a more complex answer than yes/No from her. Even that it’s not something you can rely on. Occasionally, she becomes very agitated, she starts talking with her normal voice, but she has bad episodes of hallucinations;however, she is able to recognize us. She was taken to the hospital in October and a cognitive regression on a background of deep depression was suspected; in November, as she refused to eat and drink, she was taken to another hospital and it was then that she was diagnosed with dementia. The diagnostic fell hard on us all. We have been wondering how come such advanced state of dementia could occur in such a short span of time of only 6 months. We have searched for answers in the clinics and hospitals around us. However we could not find any and something is definitely not right. This is why I wanted to ask if any such case was ever encountered. Is it possible that such advanced state of dementia to occur in 6 months? Should we accept the diagnostic or should we make further inquiries? In case anyone has any recollection of such a case of rapid dementia progression or if anyone has any suggestion or if you need further information in order to give an answer, please don't hesitate to contact us. We are in desperate need of some help! Any answer will be greatly appreciated. Thank you in advance! Sincerely, Oana V.
  25. forDad

    Parkinson of my Dad

    Hi I am from India and live in Denmark. My father is 76 years old and has been suffering from Parkinson for last 4+ years. It all started when a he lost a huge amount of his earnings in a failed investment. Since, then his Parkinson has been progressing. His major symptoms are: He has been taking a tablet called PARKIN 2 mg three times a day for last 4 years. Continuous trembling of right arm (this has been there for almost 2 years but the speed of trembling has become more now) Speech problem (only when talking consiously, like on a phone or any specific conversation) Slow movement of body (manageable) There is no other major symptoms. But the trembling of right arm is really bothering him. As it is trembling even when he is sleeping. Also, when he is eating his meals, I can see that he sometimes struggle to control his hand while taking it till his mouth. It is really painful to see him like this. I recently took him to a neurologist in Denmark here. He first referred him for citi scan. Which came with no serious results apart from parameters related to parkinson only (according to him). After that he prescribed my dad with a tablet called SINEMET (carbidop/levadop) 12,5 mg/50 mg (100 tablets). He said that my dad has to take one tablet (first week), two tablet (second week) and then move to three tablets from third week. He also said that this table can be taken with PARKIN which my dad has already been taking. We are now into fourth week, but there has been no difference in his speech and trembling of right arm, though there is little improvement in his body movement. Today, I had called the doctor and updated him with the status, he said that if there is even little improvement in his body movement then it should be considered good even if arm is trembling. I dont know what to do now. He has given another appointment on coming friday. But I want to request him to do something about his hand also. I dont know what do talk to him, It looks like he will say that let it be like this only. Does that mean that my dad's speech problem and hand movement can not be improved? is this is the only medicine available for the parkinson treatment. can the dose not be increased or medicine changed. What should discuss with the doctor.... Please guide from here...... Will be highly obliged... Regards Sandeep