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  1. I have been involved in Vibration Therapy since 2008 & in the Fitness Industry since 1995. When using correct spec machines, studies have shown very positive results for many degenerative conditions including Parkinson’s. Please read below how the technology works in regard to Parkinson’s, I will post Three Clinical Studies in the coming days. Whole-body vibration therapy can improve overall motor control because it stimulates many muscles across your body. The activity generated by vibrations can make you stronger and increase the stability that muscles and joints naturally try to maintain, according to leading research. When looking specifically at Parkinson’s disease, researchers found that a vibration therapy machine was able to create improvements in every symptom they measured. Patients had fewer tremors, less rigidity in their joints and muscles and were able to perform fine motor function tasks better. Parkinson’s disease cannot be cured today, but doctors work hard to help patients control symptoms. Whole-body vibration therapy can play a major role in keeping muscles healthy and retaining control. Every reduction in tremors is a major win for any sufferer and their family. We’re excited to see how much sufferers will benefit as vibration therapy machines become part of standard therapy and long-term studies determine the full extent of its benefits.
  2. jonticchi

    Therapist? or what!!!

    My wife was diagnosed with PD at the age of 45, That was 4 years ago. She has a great doctor, but that's the only one she see's. He is a Neurologists and one of the top movement disorder Doctors in NJ. My wife is getting anxiety about every thing. And having major break downs. I would like us to see some kind of Phyciatrist or Therapist. Her Neurologists has her on Prozac. But there of course is something more extreme going on. I know PD comes with all of her moods. Just not sure which direction to go in to help both of us. Especially my wife, I feel helpless seeing her like this. Again I know it comes in the PD territory. I am just not sure how I can help. She seems like she doesn't want to help her self, also she has been on permanent SSD for about a year. And I think she should get involved with something. Yoga I don't know. Anything that has a schedule where she can go and feel better. I can go on but I don't want to go through every detail.
  3. The Breakthrough Therapies for Parkinson’s Disease Every Patient and Caregiver Should Know About Paperback and Kindle Versions Available at Amazon.com http://www.amazon.com/10-Breakthrough-Therapies-Parkinsons-Disease/dp/0692497412/ref=sr_1_40?ie=UTF8&qid=1441071806&sr=8-40&keywords=parkinson%27s+disease Ifeanyi Enoch Onuoha said, “every challenge you encounter in life is a fork in the road. You have the choice to choose which way to go: backward, forward, breakdown or breakthrough.” Since the publication of Parkinson’s Treatment 10 Secrets to a Happier Life with Parkinson’s Disease, the most common question we have received from patients is what are and what will be the next breakthrough therapies for Parkinson’s disease. A breakthrough is defined as a sudden increase in knowledge, improvement in technique, or fundamental advancement in understanding. Often breakthroughs occur when a formidable obstacle is penetrated. Breakthroughs are heralded as major achievements and they pave the road to meaningful progress in any disease. I have spent my entire professional career focused on Parkinson’s and related diseases. I have been blessed to spend much of my time taking care of patients, and I have evolved to understand the critical need for all those suffering to have access to information on breakthrough therapies. The point that I emphasize with my patients is that breakthrough ideas and therapies in Parkinson’s disease stretch far beyond a single drug or stem cell. There is, in fact, a broader and more exciting picture and portfolio of breakthroughs spanning drug, cell, vaccine, device, genetics, care, and behavior. Patients and families with personal investments in Parkinson’s disease should be informed and updated about all of the potential breakthrough therapies. So, “what will be the next breakthrough therapy?” Because of the complexity of the disease, each person possesses a different combination of bothersome symptoms. This complexity means that the answer to the next breakthrough therapy will vary patient to patient, and it could be a breakthrough in care as well as possibly a new device or drug. We have at the National Parkinson Foundation been monitoring the breakthroughs in the field. We run the free international Ask the Doctor web-based forum, and the questions posted have helped us to keep an accurate pulse on the field. Additionally, our blog called “What’s Hot in Parkinson’s Disease” as well as guest columns as the associate editor for the New England Journal of Medicine’s Journal Watch have provided the material, insight and inspiration for a new book; 10 Breakthrough Therapies in Parkinson’s Disease. Collectively, these experiences have provided focus for the topics in this book and in some cases the actual physical material. Several chapters include topics I have covered before, and in these cases I have added and updated information. The current book is an effort to provide a comprehensive review of the most important breakthrough therapies for Parkinson’s disease. Interestingly, these topics overlap with the most asked questions by patients and caregivers. The unexpected runaway success of my first book, “Parkinson’s Treatment: 10 Secrets to a Happier Life,” has provided hundreds of messages and an ocean of feedback from patients, families and researchers. The majority of comments I received on the first book were focused on the need to understand breakthrough therapies and approaches. My desire is that this book will fill a knowledge gap and will provide hope and valuable knowledge to those in the Parkinson’s disease community. Here are some of the topics that will be covered in the 10 Breakthrough Therapies for Parkinson’s Disease book released September 1, 2015: · Disease Modifying Drugs and Biomarkers · Coffee, Tea, Exercise, Interdisciplinary Teams and Caregivers · Extended Release/Novel Delivery Systems for Parkinson’s Disease Drug and When to Start Drug Therapy · Marijuana and Synthetic Cannabinoids · New Drugs for Hallucinations, Sleep, Constipation and Dizziness · Therapies While Hospitalized and Avoiding Hospitalization · Advancing Deep Brain Stimulation Technology, Earlier Intervention and Dopamine Pumps · Stem Cells and Stem Cell Tourism · Prions, Spreading Proteins, Vaccines and Growth Factors · The Drug Development Pipeline
  4. Benyamin

    So many questions

    New to the forum so I'll start with an intro. 30 year old Canadian living in China. Diagnosed a year and a half ago. Symptoms began over three years ago. No medication to date but considering starting to take Amantadine soon. I was doing pretty well until recently when some personal problems started to impact my progression. I realize now, especially living so far away from home and family, that I need contact with other people who might be dealing with PD to help me through this. So I've come here. I have a lot of questions and would appreciate any help I can get. 1. Exercise - As I've seen time and time again, exercise is vitally important to helping manage PD. I exercise regularly and if nothing else it definitely helps my mood. But I do notice that many exercises exacerbate my tremor while I am doing them. Should I discontinue doing those exercises or just fight through them? Should I cut down on weight lifting? Core and balance exercises in particular give me the shakes, though I continue to read of their importance, should I just persevere? 2. Caffeine - I've read a lot about the positive benefits of Caffeine. However, much like my exercise problem, I notice that caffeine also makes me shake more. Again, should I ignore the symptoms and drink coffee or green tea anyway because of their potential long term benefits or should I stop drinking them? 3. Diet - Turmeric. B12. Antioxidants. Q12. Magnesium. Calcium blockers. L-Tyrosine. Vitamin D. It goes on and on The list of recommended supplements is seemingly never ending. I've been advised by my specialist in Canada not to worry about them and just make sure I eat a balanced diet. Plenty of fruits and vegetables. Needless to say, it's all a bit confusing. Anybody have anything more definitive I could take a look at? 4. Retreat - I'm planning at some point in the future of going on a Parkinsons retreat of sorts. Some place where I can go for a few weeks or months and just focus on how best to manage this disease. Ideally somewhere warm with a beach where I can consult with physicians and dietitians and physiotherapists and learn how to ensure that I maintain the highest possible quality of life. Anybody know if such a place exists? 5. Isradapine - Is anybody involved or participating in the ongoing clinical trial on Isradipine? Any results, preliminary though they might be, that can be shared at this time? 6. China - I live and work in China, I've been here for four and a half years, I speak the language and have a good circle of connections here. I'm looking to see how I can help make a difference to people with PD here. I've visited a number of specialists here and have come away feeling that they are not always able to provide the best treatment to their patients. Anybody have any suggestions or know anyways that I could help bridge the divide between here and the west in terms of providing better patient care? 7. Biological determinism - I took part in the 23 and me study and it turns out that I have one of the variants associated with Parkinsons Disease. I have one copy of the N370S variant in the GBA gene. I've been told there is nothing I can really do with this information and that it does not effect how I manage the disease. That said, I'm curious to know what epigenetic factors might influence it, or have influenced it, and what does it say about how I will progress. 8. Online - In addition to this forum, what other forums should I be following for PD related information? That's it for now, thank you for taking the time to read it and if you have any information that you think might be useful please share.
  5. Does anyone in this forum still ride? It's going to be my final stand. Meaning that is what I am hanging onto the most. I mean I have more important reasons to stay strong , my husband, my kids etc... But this I do for me which makes me better for them, anyway, I'm trying to talk with other riders but its hard to find any. I started a FB page called Shake, Rattle and Ride;). I also know the therapeutic benefits of just being around horses is huge. They don't care what you look like or your trembling or that your in a chair, they usually just like the fact that someone is petting and scratching them. Well horse people let me know if your out there. I'm going to go ride now:-)