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Bobbie_

Lymes Disease Mimics PD Symptoms

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Has anyone experienced anything like this? While researching on-line about Lymes disease for my daughter, I read that lymes disease symptoms can be mistaken for PD. Apparently LD can affect dopamine in the brain.  I'm wondering if there is a key here that needs to be turned.

I've been diagnosed with PD. Medication that I'm taking now hasn't stopped all symptoms.

Edited by Bobbie_

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Lyme is devilishly hard to accurately diagnose.  I think there's only one or two labs with a reputation of getting it right.  If you can get that test done it might give you peace of mind.

 

That said, not everyone responds well to any given PD medication.  Being on my phone I can't see if your signature block lists meds, but if you can post what meds you have tried, including dose and frequency that might help.  Including non-PD meds helps too.

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Look on line for IGeneX Labs in California.  They will send you a kit that you take to any lab to have your blood drawn and then sent back to IGeneX to test.  They are one of the best labs to get more accurate results than most.   You'll need to find a Lyme-literate doctor.   Be sure they are Lyme literate, or you''ll just waste your time and money.   There are Lyme Organizations on line that can help you.  Don't go to the LDSA.  ILADS is the more up-to-date organization for Lyme Disease information.  I'll be doing the same testing at some point, too, as I have a Lyme-related condition in addition to PD.

Best wishes to you--

 
 
 
 
 
Edited by Linda Garren
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Stump 

Well I was fishing for an answer. Have you noticed any improvement switching to Rytary?

My main complaints are poor handwriting, typing, dexterity, stiffness in left side fingers and toes, some gate issue. The meds below haven't improved these symptoms. The shakiness comes and goes. Sometimes I think it's from the meds.

Mds.

Azilect 1mg 1X a day
Mirapex .375 mg 1 X a day
Not consistent : Coenzyme Q10 100 mg 1X a day

 

 

 

 

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Linda,

Thank you for the lab and organization leeds. Good advice I will follow up with.

Are your Lyme related conditions clearly different from PD?

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Since I have a Lyme-related condition rather than Lyme itself (for instance, I don't have joint pain or racing heart), it is hard to say.  A person definitely diagnosed with Lyme would be better able to answer that.  I do know that there are some people with my Lyme-related condition who also have Parkinson's.  Perhaps when you find a Lyme-related doctor, he/she will be able to answer your question better.  Be aware that some of the docs that may be recommended to you may be "iffy," so it's very important to do a search on ratings and reviews of any recommended to you.  I didn't go to any that were recommended to me after reading about them.  There is one at Johns Hopkins that I have been thinking of contacting that I would feel very good about, but I don't know yet if he sees people in clinic or is mainly a researcher.  Either way, I think he could be a wealth of information.  I have so much else going on medically that I've put it off.  Was just in the hospital for several days due to abdominal bleeding, another issue.  if I didn't have faith in the Lord that He is in control and has a reason for these things, it would be much, much more difficult to handle my feelings emotionally.  He has lovingly provided so much that all I can do is thank Him every day.  :-)

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The power of God's love helps me through my suffering. His loving light shines into my heart replacing the darkness in my soul with grace and beauty.

Did you ever have the lymes test? Will you let me know which lymes specialist doctor you find?

Which Pd meds are you taking?

Thank you.

 

 

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I haven't yet had the Lyme (no "s" on Lyme, just FYI) test because it has been so discouraging and time consuming to try to deal with, and I can barely keep up with seeing all the docs for other things I have.  It's been very, very, very difficult.  if I eventually find a Lyme specialist, I'll surely let you now.

I take 50/200 Sinemet 5 times a day (every 4.5 hours).  It has worked out well.  I started on a lower dose. as your son would most likely be.  Not everyone reacts to the meds offered in the same way, so the MDS would work with your son over time to find the best dosage of Sinemet and add or switch to other meds that might help him, depending on his response to Sinemet.  Some MDS's will give a Sinemet "challenge," having their patient take a low dose of SInemet and wait a little bit to see if helps their symptoms or not.  That has seemed to help a number of people quickly be diagnosed.

I also deal with clinical depression, so I take meds for that (Wellbutrin and Cymbalta, the combination of which has been perfect for me for years), and I have had trouble sleeping, so I take 10mg Melatonin and .5mg Xanax each night. It has worked perfectly.

I also have Polycythemia Vera and take a chemo pill for that daily.

My MDS stresses the importance of having an adequate amount of copper in our bodies because it helps our nerve connections..  I'm sorry that I can't think how else to explain what it does (brain fog this morning), but you could look it up on line as to how it has been found to be very important for Parkies.

Does your son have at trouble getting to sleep at night, and does he have dreams where he wakes up finding that he has been physically acting out the dream?  Does he have times when his muscles tense for no reason (restless leg, restless body syndrome)?  That is another frequent symptom of PD.  Does he have balance issues?  Does he misjudge when to turn down a hall or through a door when he is walking toward it and ends up walking into the wall instead, shortly before getting to the hall/doorway?  There are so many things that I've found that are actually humorous that are symptoms of PD, that being one that always made me laugh.  :-)  With Sinemet, I don't do that any more.

 

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HI Bobbie,

I have Lyme's as well as PD. Have had PD for 24 yrs, Lyme's 4 yrs. and  have had 2 Lyme  re-infections. I am currently being treated by a Naturopath Lyme Specialist.

The symptoms for me are quite different. However, when Lyme's is flaring, my PD tremors increase with intensity. 

The neurological Lyme's symptoms for me are: repetitive eye blinking spells, tinnitis, repetitive thinking, full body shivering tremors, vision is fuzzy, one or both eyes can have floaters. Trouble talking, finding words. Sleep is difficult, my body can't get comfy.

The physical part: pain in my shins, knees, wrists, feet, and feet crack,(noise) bottoms are sore,  tender glands, sore throat, GERD, stomach pain and bowel issues. Muscle twitching. Increased thirst. 

Thats the bulk of symptoms. 

Take care,

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Linda and Drummergirl,

Geez I'm so sorry for all you both are going through. How do you know which symptoms are from PD and which are from Lyme?

Linda, is your lyme symptom the same as any of Drummergirl's?  Having the right meds is the key.

Thank you for sharing your story and sense of humor.

i've been diagnosed late last yr with early PD. My taught has been battling late term LD for years. As she realized, that was the case after many yrs of misdiagnosis.

I'm just digging to see if there is any correlation.

 

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Superdecooper, yes I still drum! 

Hey Bobbie, LD can be really difficult to dx. So many docs do not believe in chronic LD. That's why it is key to seeing a Lyme's doc.

Initially, differentiating between PD and LD symptoms was challenging, but now not so. I now know the triggers for LD, such as damp days that bring out molds, any insect bites, sweets and alcohol are some of those. With LD treatment, most of these symptoms lessen or go away. When LD is flaring, it worsens PD symptoms.

I've also found that the LD treatments have lessened my PD symptoms, which results in less PD meds.

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